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'There's no prospect of my brother improving, he can't be moved into community living'

Some families of residents at Áras Attracta in Mayo fear the facility will be closed down.

FAMILIES OF RESIDENTS in Áras Attracta, a residential respite and day service for adults with intellectual disabilities in Co Mayo, are concerned about plans to potentially move their loved ones from the home.

Earlier this year the HSE said it was “accelerating … plans to move from an institutional model of care to a community-based, person-centred model of service, enabling and supporting meaningful lives as chosen by users, within the resources available”.

hse HSE HSE

The future of Áras Attracta in Swinford is currently under review, with speculation it is to be closed down in the coming years.

The facility came into the spotlight in December 2014, when RTÉ aired hidden camera footage of vulnerable people at the centre being force-fed and physically abused.

The HSE has previously denied the facility is closing down, but residents are being assessed to see who may be better off living in the community.

Tom Ward’s brother Jim has lived in the facility for about 26 years. He is profoundly physically and intellectually disabled, and needs constant care.

“He can’t speak or communicate. As far as we know he doesn’t understand or has no way of indicating if he does,” Tom said.

He and his mother Brid fought a public campaign in the late ’80s and early ’90s to secure residential care for Jim, who is now 43 years old.

Tom told TheJournal.ie that while living in the community might benefit some residents, it is simply not an option for his brother.

“Some people in Áras might do very well in the community, some residents are much more capable.

“No matter how fantastic they paint community living, there’s no prospect of my brother’s condition improving. It will disimprove as he gets older.”

Jim-Ward_Birthday_Aras-Attracta Jim Ward celebrating his birthday Tom Ward Tom Ward

Tom said that Jim has access to everything he needs at Áras Attracta, including a hydrotherapy pool – something Tom described as his brother’s only pleasure in life.

We all know about the scandals that have been made public … Jim has never had anything but the utmost care and respect and love from the staff looking after him.

Tom said the main issues at the facility are cutbacks in terms of resources and staff. He believes it would be a waste to close the facility or scale it down as it was purpose-built and is of a higher standard than other similar centres.

“There are some institutions that need to close down, Áras Attracta is not one of them,” Tom said, adding that some other facilities are not fit for purpose and “little more than prison barracks”.

Tom and Brid have written to the HSE and Department of Health about their concerns, but Tom said they have not received direct answers to many of their questions about specific aspects of Jim’s future care.

In a letter sent from the HSE to Brid last month, and seen by TheJournal.ie, she was told that people “live better, more meaningful lives in their communities with the necessary supports to meet their needs”.

The letter told her that a “transition team … will work with individuals and their families to establish the best possible life for the person on their transition to the community”.

He said his mother (86) “thought her worries about Jim were over”, but is now very concerned about his future, adding: “She will do anything she believes will help Jim.

She is a very mild, timid woman. She will be affected and frightened, but if she takes a stance on Jim she won’t be budged.

HSE

A spokesperson for the HSE sent us the following statement: “We are in the process of a service improvement plan moving from an institutional model of care to a community based model of support.

“This will be an innovative model of integrated community support networks that promote dignity, respect, empowerment, choice and autonomy for people with intellectual disabilities.”

The statement added that the HSE and staff at Áras Attracta are “fully engaged” with the move away from congregated settings, and a family forum on the subject has been in place since September 2015.

16/5/2016 National Kidney Transplant Units Finian McGrath, Minister of State with responsibility for people with disabilities

The spokesperson noted that, at present, 90 people avail of full-time residential services at Áras Attracta, with an additional eight people availing of respite services and a further 15 individuals availing of day services.

They said that all people living at Áras Attracta “participated in an assessment process to determine their specific support needs”.

The assessments were shared with each individual and/or family member to outline the level of support required to live in the community.

“People living at Áras Attracta have historically lived in an institutional model of care and will need support and assistance to transition to a social care model of support. The goal is to empower people to have an enhanced quality of life and to establish a more positive living environment. People will exercise choice in where they live and with whom.”

The statement said that, in the first year of the transition process, 27 people are moving “to homes of their choosing in the local communities”.

It added that any families who are “fearful of community living” will be supported “as we progress with the implementation of the decongregation policy”.

We will of course respect each person’s wishes and preference and nobody will be forced into any arrangement that is not consistent with their wishes.

The spokesperson said that easy-to-read documents were developed ”to help keep residents better informed about changes happening at Áras Attracta”.

It noted that while these documents “generally contain an acknowledgement form to ensure that residents have received the information”, it is “not a consent form and is not intended to be such”.

Review of services 

Michael Fitzmaurice, independent TD for Roscommon/Galway, weighed in on the subject of de-congregation of residential care centres recently, saying the policy “needs to be stopped until a detailed review of services available in the community is carried out”.

4/4/2016 Talks on Forming a New Government Michael Fitzmaurice RollingNews.ie RollingNews.ie

“At the moment a policy of de-congregation of residents who are in care centres and who have learning and intellectual disabilities is being followed.

“And while a move into the community may be beneficial for many of these patients, there are others, especially those who have more severe disabilities, who may not have access to the services that they are used to if they are moved out into the community,” Fitzmaurice said.

Minister of State with responsibility for disability Finian McGrath told us he is “fully supportive” of the move away from from congregated settings.

I want to assure any concerned family members that the process of moving a person with disabilities out of a congregated setting will be a supportive one. This transition will not happen overnight and each person’s wishes will be respected.

“The HSE has put in place comprehensive transition plans, which includes extensive engagement with the person themselves, their families, carers and advocates, as well as the service provider, to ensure successful and sustainable transitions into the community.

“These transition plans also identify what resources are required to support the person in moving out of a congregated setting – funding, equipment, community resources, circles of support, and staff skill sets.”

He added that he has not yet seen a letter sent to him from Brid, he is “happy to respond to any concerns expressed” by her.

Read: Did you miss the RTÉ care home exposé? Here’s what happened

Read: Investigation underway after resident dies at Áras Attracta centre

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19 Comments
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    Mute Gerard J. Hannan
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    Mar 28th 2018, 7:46 AM

    Hopefully now that things are calming he might take time out to release a new Gangham song for us fans.

    101
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    Mute pats brandon
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    Mar 28th 2018, 7:06 AM

    Quick! Someone stop Leo before he invites him here!

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    Mute Fabio Dillon
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    Mar 28th 2018, 7:09 AM

    @pats brandon: what has Leo got to do with this?

    79
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    Mute nelly
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    Mar 28th 2018, 7:58 AM

    @Fabio Dillon: it’s called a humorous comment and as for Leo and Kim that won’t happen as there is no way you can be seen to meet with a monster, who has destroyed his peoples lives and forced more than a few people to leave their home and birth place for a better life and whose people are now suffering from food shortage, no money and health system that is 3rd world and has people dying as a result.
    But if Kim has no problem with this and can overlook Leo’s faults and failings to the irish people so be it

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    Mute Walt Jabsco
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    Mar 28th 2018, 8:12 AM

    @nelly:
    Trying to compare Ireland to NK is moronic, even if its an attempt to be humourous.

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    Mute nelly
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    Mar 28th 2018, 8:27 AM

    @Walt Jabsco: so sorry snowflake, did I upset you

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    Mute Dessie Deratta
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    Mar 28th 2018, 8:28 AM

    @Walt Jabsco: who performed your humour bypass?

    Damn good whoever it was….

    22
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    Mute Walt Jabsco
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    Mar 28th 2018, 9:04 AM

    @Dessie Deratta:
    I have a great sense of humour thanks sweetheart – it’s just that there was nothing even remotely funny in Nelly’s comment.

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    Mute nelly
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    Mar 28th 2018, 9:20 AM

    @Walt Jabsco: 25 thumbs up and counting says different. Unfortunately the journal and snowflakes, like yourself got rid of the red thumbs down, as you don’t do rejection well. Smiley face, smiley face, humorous face, laughing face. Wave bye bye

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    Mute Michael Geraghty Bodycoach
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    Mar 28th 2018, 10:17 AM

    @Walt Jabsco: I’d say you’re great Craic over a pint.

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    Mute Colm Mullen
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    Mar 28th 2018, 10:34 AM

    @nelly: except for food shortage, I agree 100%

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    Mute tweetforjunk
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    Mar 28th 2018, 11:38 AM

    @Walt Jabsco: No you don’t and yes there was.

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    Mute Anton Friendo
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    Mar 28th 2018, 11:55 AM

    @pats brandon: Leo can invite Justin Trudea for an afternoon of ..
    Orange Mocha Frappuccino’s ! !!!!
    https://www.youtube.com/watch?v=OTrxEQnPtAg

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    Mute Fabio Dillon
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    Mar 28th 2018, 3:55 PM

    @nelly: yeah it’s not a humorous comment. Completely and utterly a non relevant comment. Thanks for your dribble though.

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    Mute pc_comments
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    Mar 28th 2018, 7:33 AM

    Chins finally taking some responsibility for this rogue leader with nuclear weapons which they created…….Have to give Trump some credit for this…..

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    Mute Sean Conway
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    Mar 28th 2018, 7:56 AM

    @pc_comments: What are you talking about?

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    Mute Dessie Deratta
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    Mar 28th 2018, 8:24 AM

    @pc_comments: in this case you could use the common typo “rouge regime” and still be right.

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    Mute WoodlandBard
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    Mar 28th 2018, 10:13 AM

    @pc_comments: yes, puzzled myself. Read somewhere, USA has 5500 nuke warheads, Russia has about 4000 nukes, China has 250, India and Pakistan have about 5 each, and there is world panic that Rocket Man may have 1 ???

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    Mute Dessie Deratta
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    Mar 28th 2018, 8:03 AM

    Expel some Chinese diplomats.

    We don’t need an actual reason….or must we wait till British spooks instruct us to?

    37
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    Mute Sean Conway
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    Mar 28th 2018, 9:04 AM

    @Dessie Deratta: What has china done on ireland?

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    Mute Ronaldo Blanc
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    Mar 28th 2018, 2:09 PM

    @Sean Conway: What have the Russians done to Ireland? Tory boys Leo and Simon wanting to please their superiors.

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    Mute Harry Whitehead
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    Mar 28th 2018, 6:23 PM

    @Dessie Deratta: Stick to your day job.

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    Mute Dessie Deratta
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    Mar 28th 2018, 9:34 PM

    @Sean Conway: As we see from the Russian affair we don’t need a reason…neither China nor Russia have every done Ireland any harm.

    But lets expel them to show solidarity with the Pentagon.

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    Mute Ger Burke
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    Mar 28th 2018, 8:11 AM

    Donald will sort out all those lads

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    Mute Larry Doyle
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    Mar 28th 2018, 11:20 AM

    @Ger Burke: The guy can’t even hire a lawyer.

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    Mute Ger Burke
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    Mar 28th 2018, 3:00 PM

    @Larry Doyle: Thanks for the leftie input. Took a while for you to come up with that I’d say.

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    Mute Centerro
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    Mar 28th 2018, 8:00 AM

    Now, let’s hope these two lads can sort things out themselves. No need for the US to stick their beak in. N.korea are no more a threat to the world than Wales are.

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    Mute Walt Jabsco
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    Mar 28th 2018, 8:16 AM

    @Centerro:
    Tell that to the South Koreans

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    Mute Dessie Deratta
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    Mar 28th 2018, 8:26 AM

    @Walt Jabsco: actually the SoKos are scared that Trump will start a war that will kill millions of them.

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    Mute Walt Jabsco
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    Mar 28th 2018, 9:08 AM

    @Dessie Deratta:
    It’s possible to be afraid of both the US and NK you know. They just don’t want a war full stop, and who could blame them?

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    Mute Sean Conway
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    Mar 28th 2018, 9:34 AM

    @Walt Jabsco: It’s ok for th US to have a civil war. but korea or anyone shouldn’t?

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    Mute Mick Jordan
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    Mar 28th 2018, 1:08 PM

    @Sean Conway: They did have one. 1950 to 1952. Read a history book.

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    Mute Adam Reid
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    Mar 28th 2018, 11:28 AM

    Another triumph for Trump.

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    Mute Liam Rogers
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    Mar 28th 2018, 9:00 AM

    Its a good step forward

    5
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    Mute Adrian
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    Mar 28th 2018, 8:17 AM

    Funny how a guy that’s worshipped so much in North Korea is so scared that he has to take secret trips abroad. Thought he’d be a guy for full state honours when he travels abroad. But then the north Koreans probably don’t even know he’s gone!

    6
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    Mute Dessie Deratta
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    Mar 28th 2018, 8:31 AM

    @Adrian: apparently he is afraid of flying.

    Perhaps not for the same reason that many people are.

    9
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    Mute Me_a_monkey
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    Mar 28th 2018, 9:10 AM

    @Adrian: probably so much secrecy because he’s scared of being assassinated or being kidnapped by the CIA.

    If either happened the country would deny it and his clone would take over!

    8
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    Mute johnbunton
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    Mar 28th 2018, 12:09 PM

    I’d love to go for a pint him

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    Mute johnbunton
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    Mar 28th 2018, 12:09 PM

    @johnbunton: with him

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