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Irish Red Cross Youth Department volunteers at a Dublin AIDS Alliance event. Laura Gallagher/Facebook

'Once you say you're HIV positive, you can't take it back'

HIV in Ireland: screening, stigma and support

SOME 344 PEOPLE were newly diagnosed with HIV in Ireland last year.

Globally, 30 per cent of people living with the virus are doing so without knowing it – that works out at approximately 1,800 people in Ireland.

Dr Erin Nugent, Community Support Coordinator at the Dublin AIDS Alliance, said the biggest issue surrounding HIV is the fact that people are passing it on unwittingly.

“If people don’t know [they are HIV positive] it can cause a lot of complications. People often think they’re not at risk because they have no symptoms.

People think ‘I’m not a man who has sex with another man, I’m not a sex worker, I’m not from a country where it’s endemic’ and remove themselves from the risk. There’s a continuum of risk and we try every avenue possible to make people aware of this.

Two years ago the Alliance launched a pilot HIV and STI screening programme. This free service was fully rolled out in 2013, testing 194 people: 110 men and 84 women.

Anyone who tests positive is given an appointment at St James’ Hospital.

Nugent said the Alliance’s promotional material particularly targets migrants who may be “unaware of issues and services around HIV and STIs”.

She said many immigrants are fearful that a positive HIV diagnosis could lead to their deportation. At least half of the people diagnosed in Ireland last year were born abroad.

The Alliance held 1,712 interventions in 2013 – covering areas such as counselling for those with HIV, training for health workers and distribution of welfare information.

Nugent said that about 200 people – those with HIV and their families – visit the group’s office in Parnell Square West every week.

Last year, the Alliance teamed up with the customers and owners of businesses on Moore St and Parnell St to help compile a booklet explaining what a person attending a screening centre would need to know.

As part of the the group’s ‘Just Carry One’ campaign, 62,317 free condoms and 54,292 lubricant sachets were distributed in 2013.

J0241960004 Friday 15th June 2012: Dublin AIDS Alliance 'Just Carry One' campaign launch Facebook Facebook

In 1995, there were 3,361 STIs diagnosed in Ireland. This figure has steadily increased since then, peaking at 13,442 in 2011, before dropping to 12,719 in 2012.

Almost 7,000 people in Ireland have been diagnosed with HIV since the early 1980s.

The Alliance is primarily funded by the HSE and the North Inner City Drugs Task Force, receiving €358,867 and €71,000 respectively from the two organisations in 2013. It also raised €10,951 through fundraising and donations last year.

HIV in Ireland in 2013: The numbers

  • 344: newly diagnosed cases
  • 258: men diagnosed
  • 86: women diagnosed
  • 34: average age of new diagnosis
  • 3: mother-to-child transmissions
  • 38.1: percentage of diagnoses related to straight people
  • 46.2: percentage of diagnoses related to gay men
  • 5.2: percentage of diagnoses related to injecting drug users

Stigma

Nugent said that a huge level of stigma still surrounds HIV.

She acknowledged that breakthroughs in treatment mean the virus has rightly been labelled more “manageable” in recent years, but warned that this could lead to a lax in public awareness and concern.

However, she said it was undoubtedly a better situation than in the 1980s when public awareness campaigns “focused on fear” and “ads carving AIDS on a headstone with John Hurt’s voice in the background”.

Dan Edwards / YouTube

“A lot of people are saying today that HIV is like any other illness, and in some ways that’s true. When diagnosed early it can be managed like other illnesses and people can still live a healthy life.

In terms of stigma, it’s not like other illnesses. When people find out they ask themselves ‘Who will I tell or what will I tell them?’ You wouldn’t do that if you had another disease. Once you say you’re HIV positive, you can’t take it back.

Nugent added that some people are very judgmental of those who have been positively diagnosed as they see HIV as “a moral issue, not a health issue”.

They ask ‘How’d you get it?’ That’s not something you’d ask someone with another illness.

Side effects of HIV medication can include an upset stomach, diarrhoea, headaches, and severe weight gain or loss.

Nugent said that a lot of confusion surrounds the transmission of HIV, with some people thinking a person can become infected through hugging someone who is HIV positive, or by washing in the same shower or sink.

She stressed the importance of early diagnoses, saying such cases are more easily treated.

If people are diagnosed late, they are less likely to respond to treatment and more likely to die.

The Alliance has teamed up with several organisations for various campaigns, including Positive Now, the Gay Health Network, the Irish Red Cross, the Ana Liffey Drug Project and a number of colleges.

As important as mental health

The Gay Men’s Health Service’s 2013 Annual Report was launched in Dublin at the 12th annual All-Ireland Gay Health Forum on Friday.

It showed that almost 6,000 gay men underwent HIV and STI testing at the organisation’s clinic last year. One in five received a diagnosis, with 33 men being diagnosed as HIV positive.

Tony Cooney is the Personal Development Facilitator at the GMHS and the director of Gay Switchboard Dublin, a support helpline for the LGBT community that is celebrating its 40th anniversary this year.

Cooney said that the number of men using the GMHS’s clinic in 2013 increased by seven per cent. Two thirds of users were 39 years old or younger and 14 per cent lived outside of Dublin.

Man2Man - Man2Man's Photos | Facebook Dr Shay Keating, Rory O'Neill and TD Jerry Buttimer at the launch of Man2Man's STI screening awareness campaign Facebook Facebook

The GMHS, which provides a number of services from its centre on Baggot St, has been working with the Dublin AIDS Alliance for 20 years. They both support Man2Man, a campaign to promote men’s sexual health that was founded by the GHN and the HSE.

“We’re all individual organisations but we work together to get a key message across. By working together we have more strength and can develop programmes much quicker,” Cooney explained.

He said that sexual health awareness should be promoted to the same extent as mental health, as they are “absolutely” of equal importance.

“Sexual health impacts on mental health and vice versa.”

Cooney acknowledged that people can be apprehensive about attending a screening clinic but said that once they do go, they will be “treated with respect”.

For more information on HIV and AIDS click here.

Related: More gay men are seeking STI testing and advice

Read: Undiagnosed HIV rates high in Dublin, widespread testing recommended

Read: Email and drop-in service to support sexual health in gay community

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13 Comments
    Install the app to use these features.
    Mute Conor Farrell
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    Jun 9th 2013, 4:29 PM

    You’ll be missed, Iain. :(

    159
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    Mute Steve Hardy
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    Jun 9th 2013, 4:29 PM

    Thanks for the stories, you’ll be missed

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    Mute Aoife O'Riordan
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    Jun 9th 2013, 4:29 PM

    RIP, Iain. You were bloody fantastic.

    114
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    Mute Heather Sinnott
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    Jun 9th 2013, 4:35 PM

    Started to re-read his books again since the news of illness. Sad to hear he died. Enjoying Whit all over again.

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    Mute Rian Lynch
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    Jun 9th 2013, 4:32 PM

    RIP

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    Mute Stephen Fitzpatrick
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    Jun 9th 2013, 4:33 PM

    RIP

    The Algebraist is one of my favourite sci-fi novels of all time.

    63
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    Mute Mr Jingles
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    Jun 9th 2013, 4:33 PM

    I hope they make a culture movie!

    63
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    Mute Gareth Staunton
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    Jun 9th 2013, 7:01 PM

    Me two. Consider phleabus please.

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    Mute big shmoke
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    Jun 9th 2013, 4:46 PM

    RIP, thanks for the books. You will be remembered.

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    Mute Dessie Edmunds
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    Jun 9th 2013, 4:35 PM

    A brave, talented writer

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    Mute Daisy Chainsaw
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    Jun 9th 2013, 4:50 PM

    RIP to a gifted writer.

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    Mute Derek Hynes
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    Jun 9th 2013, 4:55 PM

    Fantastic writer. I still have The Crow Road to read. So many great books by him.
    RIP

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    Mute Feargal Garvin
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    Jun 9th 2013, 7:40 PM

    Crow Road is a gem. I wish I could read it for the first time again.

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    Mute Joan Featherstone
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    Jun 9th 2013, 5:39 PM

    Never read his books as not a si if fan, but as a fellow cancer sufferer, may he rest in peace.

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    Mute Patrick Cockfarmer
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    Jun 9th 2013, 5:48 PM

    Joan – “Viva forever / I’ll be waiting / Everlasting / Like the sun”

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    Mute Rónán O'Suilleabháin
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    Jun 9th 2013, 6:35 PM

    Joan he has as extensive a fiction catalog as he does science fiction. Well worth a read.

    I’m finishing his most recent sci-fi right now, having just finished his most recent fiction.

    My christmas books will meet be the same

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    Mute Joan Featherstone
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    Jun 9th 2013, 7:06 PM

    Ronan obviously I’ve missed something, need to investigate, I’m an avid reader!

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    Mute Dave O'Shea
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    Jun 9th 2013, 8:55 PM

    Joan.. He went under the name Iain M Banks when writing his sci fi novels… That should help.. Make sure to read the wasp factory and crow road… Bloody sublime.

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    Mute Joan Featherstone
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    Jun 10th 2013, 5:41 AM

    Thanks Dave!

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    Mute Patrick Cockfarmer
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    Jun 9th 2013, 5:00 PM

    RIP – a great author. I love The Crow Road.

    Why does God give people cancer?

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    Mute Joseph Siddall
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    Jun 9th 2013, 5:09 PM

    Patrick, why indeed. 59 is no age but he achieved more than most and will be sadly missed.

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    Mute Patrick Cockfarmer
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    Jun 9th 2013, 5:32 PM

    Ah – I see a couple of right-wing religious nuts are out in force. They have no answers of course.

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    Mute Martin St John
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    Jun 9th 2013, 5:21 PM

    How sad … Read the wasp factory meny moons ago and it was a masterpiece … My English teacher borrowed it and said it was the best fiction he ever read . I think that says it all .. Great writer !

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    Mute Jennifer Hislop
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    Jun 9th 2013, 5:37 PM

    Tom sharpe and Iain banks in one week. Too sad. Dead air is my favourite banks book.

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    Mute Robin Hilliard
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    Jun 9th 2013, 6:22 PM

    ‘The Bridge’, ‘The Player of Games’ and ‘Use of Weapons’.

    What a brilliant talent.

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    Mute John Magennis
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    Jun 9th 2013, 6:28 PM

    So sad, I loved the Wasp Factory. RIP

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    Mute Colin B
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    Jun 9th 2013, 5:50 PM

    Never read any of his sci-fi but my personal favourite Complicity was a great and underrated book of his. A very talented storyteller. He leaves a valuable legacy to future generations who appreciate good writing.

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    Mute Damian Long
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    Jun 10th 2013, 12:16 AM

    Very sorry to hear this,huge fan, rest in peace Iain……

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    Mute William Grogan
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    Jun 9th 2013, 10:33 PM

    It’s a toss up who was the greatest SF writer, Banks or Philip K Dick. All very sudden. Apparently he didn’t suffer towards the end. 59 is very young nowadays. I’m reading The Hydrogen Sonata. Maybe I’ll read it slowly.

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