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"The most humbling experience of my life" - parents and kids remember Crumlin Children's Hospital

The venerable old hospital turns 60 this year, and people are sharing their experiences, both happy and sad, of being there.

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THERE’S A NEW children’s hospital in town – or at least, there will be come 2020.

You may have heard about the granting of planning permission for the new hospital at St James’s campus in Dublin. There’s been a lot of debate about the issue, both positive and negative.

But the existing children’s hospital is about to hit a significant milestone of its own.

Our Lady’s Children’s Hospital Crumlin is turning 60 this year. To mark the occasion, the Children’s Medical and Research Foundation (CMRF – Crumlin’s fundraising arm) has launched a Crumlin’s Big Book of Memories campaign.

The grand old hospital has a very special place in a lot of Irish people’s hearts, parents and children both – as you can tell from this selection of their stories.

Some are happy, some are devastatingly sad. All are powerful.

The Parents

Ann-Marie

Katie

“My daughter Kate was transferred to Crumlin at three days old with acute renal failure, a hole in her heart and chronic ascites of the abdomen which meant she was capable of producing two litres of fluid in her abdomen daily.”

My first memory of Crumlin was sitting outside ICU Two on the plastic chairs for over two and a half hours waiting to see if the nurses could stabilise Kate so we could see her. It seemed like a week before we were called in. I’ll remember forever that fear in the bottom of my stomach as I sat wondering if this hospital could hold the answers to our prayers.
Kate was given a 5% chance at one stage and many of the 63 days spent in Crumlin were filled with worry. It took six and a half weeks for the fluid to subside and we never did find out why it happened, she was just deemed a miracle by the many teams of consultants, doctors and nurses that cared for her.

“I met some of the most wonderful people in Crumlin in my nine weeks there and I can honestly say it was the most humbling experience of my life. It changes you, you will never be the same after being a Crumlin parent, you will never take things for granted or sweat the small stuff in life.”

Nicola

Nicola cianan cianan

“My son spent only a couple of hours in Crumlin hospital. It was May 1999. Those couple of hours saved his life.”

When Dylan was four he was hit by a car while he was out playing. He died in the ambulance but thank God they managed to bring him back to me. When he was taken to Crumlin the staff were brilliant. They looked after Dylan so well I reckon without them he wouldn’t be here today.

“They were so compassionate and caring, giving us everything we needed. I always remember the doctor taking us into the parents’ room and telling us Dylan had 24 hours to live. He had suffered a fractured skull among other injuries. My whole world crumbled that night.”

He’s now 21 and has made a full recovery thank God. It was a scary night, the worst of my life, but thanks to the staff of Crumlin my baby boy survived. I owe them everything. This picture is of Dylan (left) today with his partner. I am so proud of him. He always will be my little soldier.

Lorraine

lorraine

“My first memory was that first devastating walk down what I called the long mile to St John’s ward, the unknown which was to be our second home for 18 months.”

We have some bad memories but a lot of great ones thanks to good staff and camaraderie with other parents going through the torture that is childhood cancer.

“Thank you to the doctors and staff for giving us our daughter’s future. We had lots of funny moments and endearing ones too.”

Jennifer

jennifer

“As a new mum I was petrified when on Christmas Day Julianne, who was just 13 days old, developed a haemangioma. It grew rapidly and people would always stare at her.”

“At four months old she started treatment under Dr Watson. I can’t describe how Crumlin has changed our lives and Julianne’s. The road was long but 18 months after we started we were told our treatment was finished.”

Patricia

Patricia

“We spent seven years up and down to Crumlin Hospital from Westport with our son Luke who was diagnosed with a brain tumour at the age of six.”

“We lost our very brave, amazing boy two years ago. He was just 13. I will never forget his oncologist in Crumlin Dr Michael Capra, a wonderful man with a big smile. He always had a great welcome for Luke and always made him feel at ease.”

I can still see Luke walking along the corridors, making his way to the fish tank to watch the fish, then racing to the elevator to make his way to Hoops Clinic. He always loved his visit to the little shop where he knew he was guaranteed a treat or two before we would leave to make our way home. I remember buying him a little teddy bear on his very first visit to Crumlin. It was christened Floppy.
Floppy accompanied Luke on all his trips to Crumlin, Beaumont and Temple Street – he would tuck him under his arm as he was wheeled to theatre time and time again. The memories. All too painful now.

Rose

“I don’t have a photo, only memories.”

“Our son Stephen was in Crumlin in 1979. He was there for five weeks with a heart condition. He didn’t make it – he died on 26 April 1979, aged seven weeks.

They did everything they could for him. The staff were all lovely and so good. They made us feel so welcome when we were there. I would like to thank you all for the good work you do.
Keep it up. I am so happy for all the children that get to go home. It was 37 years ago that Stephen died but I still think of the staff who looked after him. Thank you all. God bless you.

The children

Matthew

matthew

“As a baby I was under the cardiac team in Crumlin. I have Down Syndrome.”

I don’t remember that first trip – over the years I had many a trip and sleepovers. At 11 years I was admitted to St John’s ward and there began 3 very difficult years. I have a few war wounds from the treatment.
I’m nearing 20 now and have spent the last week sailing with Sailtraining Ireland off the coast of Scotland. Thank you to all the staff at Crumlin.

Ciara

Ciara

“Born 22 May 1997, two months premature at 3lbs 2oz with a critical heart disease.”

“I don’t remember much but all I know was my chances were next to none…”

But now here I am 19 years later in college, playing sport and enjoying life thanks to the amazing work of the doctors in Crumlin and I am forever grateful.

Iris

Iris

“I spent the majority of my childhood in Crumlin, from birth right up until the age of 16. I had over 100 operations there for congenital hip disorder and a fused knee-joint from birth.”

Femur rods, external fixators, hip stabilisation rods and more. I would not be walking as I am today without the years I spent in Crumlin and the doctors and staff who took the time to make me feel loved and safe and special.
I have since had nearly 100 more operations over the years but I will never forget my time in Crumlin. I look at the great life I have now – despite the hurdles, you made it all possible. I will be forever grateful.

Gerry

gerry

My twin sister Catherine and I had our tonsils taken out in Crumlin in the summer of 1962. We were just seven years old.

Our recovery happily involved lots of jelly and ice-cream. Nowadays I work in the hospital – lots has changed but the staff are all as nice as ever. One really big difference is that unlike in 1962 parents can now stay with their children in the hospital. That’s good news.

Caoimhe

Caoimhe

“When I was born, Crumlin saved my life. What was a frightening time for my parents turned out to be a positive time as a wonderful team of doctors, surgeons and nurses battled with my tumour alongside my six-day-old self.”

I’m 22 now and I constantly think of how lucky I am that I had these people who cared so much for a tiny tot.

Bridene

bridene

“I spent the first five years of my life in and out of Crumlin hospital. It was my second home. I was born with a heart condition called Fallot’s Tetralogy and it required several open heart surgeries at the beginning of my young life.”

This was in the 1980s and Fallot’s was quite a rare condition. If it wasn’t for the expertise of my heart surgeons and the living care of the nurses I wouldn’t be here to tell my tale.
I’m now a grown woman with a little girl of my own, and Crumlin hospital will always hold a special place in my heart.

You can read more of these stories, or leave a memory of your own, here.

Read: This patch will say you’re at risk of being sunburned before it happens

Read: Dyslexic student launches High Court action after being denied exam support

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15 Comments
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    Mute Nick Allen
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    Nov 14th 2017, 11:24 AM

    SF will never say such actions are not justified. They still claim the Birmingham bombings were legitimate targets and it was a result of the phones were not working which led to innocent people being murdered. When dealing with a group of people ie SF, who quite clearly have an across the board low level of intelligence and education (there is the odd clever one), coupled with their lack of moral threshold, it is always going to be difficult to move forward.

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    Mute Paul Devlin
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    Nov 14th 2017, 11:31 AM

    @Nick Allen: what makes you think this was the work of republicans?

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    Mute Ross Taylor
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    Nov 14th 2017, 11:33 AM

    @Nick Allen: Clearly you have a low level of intelligence as the Waterside area is THE loyalist area of Derry city and it’d be more likely to see a polar bear than a Shinner there

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    Mute Martin Doherty
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    Nov 14th 2017, 11:39 AM

    @Nick Allen: nick as a Derry man I can tell you that these pipe bombs were found in a staunchly loyalist area of Derry,but don’t let the facts get in the way of your agenda

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    Mute Nick Allen
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    Nov 14th 2017, 11:40 AM

    @Paul Devlin:

    I️ didn’t suggest it was SF. The article said it needs people from across the community to say it is and always was unjustified. SF is definitely a stakeholder in the community and I️ was simply highlighting that they will never say that.

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    Mute Harry morriarty
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    Nov 14th 2017, 11:41 AM

    @Nick Allen: what are you on about? A big long post of rubbish. Check the facts first maybe.

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    Mute Nick Allen
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    Nov 14th 2017, 11:42 AM

    @Ross Taylor:

    Ross, I️ think it maybe you lacking the grey cells. Try reading the article again and then my comment. Then please come back and highlight where I️ said it was SF and how my comment does not specifically reference a point made in the article

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    Mute Nick Allen
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    Nov 14th 2017, 11:43 AM

    @Martin Doherty:

    No agenda, just stating the facts. As I said to the other posters who don’t manage to read the article or my comment correctly, please show me where I️ said this was SF

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    Mute Nick Allen
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    Nov 14th 2017, 11:44 AM

    @Harry morriarty:

    Again another person not able to assimilate simple information. Try reading the article and my response again

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    Mute Tweed Cap
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    Nov 14th 2017, 12:48 PM

    @Martin Doherty:
    Nick is a member of the Fine Gael multiple account ghoul squad on here. The ones that like to haunt the comments section to fabricate as much nonsense as possible. They get particularly aroused and hard when they find SF articles.

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    Mute Nick Allen
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    Nov 14th 2017, 1:02 PM

    @Tweed Cap:

    The article is not about SF and if you care to read it and if you knew anything about the history you would probably understand that it is not suggesting it was SF. What other name do I use? Any proof of that or is it just more of the BS you make up on here on a regular basis?

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    Mute Father Hody Commody
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    Nov 14th 2017, 1:02 PM

    @Nick Allen: Well, that’s a retreat quicker than diarrhea. I’ve read, and re-read your original post. It mentions SF only. Nothing about loyalists. So it’s 100% that your intention was to lay the blame at SFs door.

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    Mute Tweed Cap
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    Nov 14th 2017, 1:05 PM

    @Nick Allen:
    Pull the other one Nicky. It has Christmas bells on it.

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    Mute Nick Allen
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    Nov 14th 2017, 1:06 PM

    @Father Hody Commody:

    Its not a retreat. I simply posted that SF will never say that the means were not justified which is in relation to the specific point in the article which says “We need to hear a united message from across the community that such actions have never been justified and they will never be successful.”

    How come simple English is so challenging for some people to understand

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    Mute TonySuperSaints
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    Nov 14th 2017, 1:07 PM

    @Nick Allen: “The article is not about SF…” then why mention them?

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    Mute Nick Allen
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    Nov 14th 2017, 1:08 PM

    @Tweed Cap:

    Can you actually point out any inaccuracies in what I am saying or show where I am not making a comment in relation something in the article. Other than posting unfounded accusations can you come up with any type of comment that has any level of intelligence or debate or is that completely beyond you?

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    Mute John Dman
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    Nov 14th 2017, 1:09 PM

    @Nick Allen: go to bed! Your embarrassing yourself!

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    Mute Nick Allen
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    Nov 14th 2017, 1:14 PM

    @TonySuperSaints:

    Did you read the comments or the actual article. Maybe try doing that before posting

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    Mute TonySuperSaints
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    Nov 14th 2017, 1:31 PM

    @Nick Allen: Did you read the article? Or maybe there is more than one Nick Allen posting because you are the one who said “The article is not about SF…” I asked then, why mention them?

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    Nov 14th 2017, 1:44 PM

    @TonySuperSaints:

    If you read the comments as suggested you would have discovers why but I️ will explain it again for you. Towards the end of the article it calls for all members of the community to say that it is and always has been an unjustified action. I️ am sure you will agree that SF are a very important group which is a member of the community. I️ am highlighting that SF will never say that this type of action is and always was unjustified. I️ backed this statement up with the story about the Birmingham bombings as SF still claim the pubs were legitimate targets. So although the article is not about SF it does reference them as a part of the community. I️ trust that clears it up for you.

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    Mute Leadóg
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    Nov 14th 2017, 2:24 PM

    @Nick Allen: mighty straw clutching there.

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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 2:59 PM

    @Nick Allen:

    “SF will never say such actions are not justified.” (Nick Allen)
    “Can you actually point out any inaccuracies in what I am saying” (Nick Allen)

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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 3:00 PM

    @Nick Allen:

    I can post up a list as long as your arm of SF condemning dissident attacks (assuming that’s what you meant when you referred to “such actions”). But if its the specific phrase “not justified” you want then…

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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 3:01 PM

    @Nick Allen:

    ‘Sinn Fein South Down MLA, Caitriona Ruane, said those responsible were “attempting to carry out an unjustified campaign of violence”.’
    http://www.bbc.co.uk/news/uk-northern-ireland-10902438

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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 3:01 PM

    ‘In a statement on Tuesday, Sinn Féin said it believed his killing was “wrong and unjustifiable”‘
    http://www.bbc.co.uk/news/uk-northern-ireland-37352016

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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 3:02 PM

    @Nick Allen:

    ‘There is no justification for dissidents’ activities of these gangs says Sinn Féin’
    http://www.irishnews.com/news/2014/10/30/news/there-is-no-justification-for-dissidents-activities-of-these-gangs-says-sinn-fe-in-106649/

    Shall I keep going?

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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 3:04 PM

    @Nick Allen:

    http://irishecho.com/2011/04/sinn-feins-sheehan-condemns-dissident-violence/
    “Unfortunately there are others out there who will continue to justify the use of force – they can’t justify it,” (Pat Sheehan speech condemning dissident groups)

    5
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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 3:05 PM

    @Nick Allen:

    http://www.newsletter.co.uk/news/crime/grow-up-sinn-fein-man-tells-dissidents-1-7326556
    ‘There is no justification for these actions’ (Oliver McMullan, SF)

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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 3:06 PM
    5
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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 3:18 PM

    @Nick Allen:

    https://www.irishnews.com/news/2017/10/31/news/new-dissident-group-claims-it-left-device-in-west-belfast-1175546/
    ‘Sinn Féin MLA Órlaithí Flynn last night condemned those responsible for the alert. “They have no regard whatsoever for the local community,” she said. “There can be no justification for this type of activity and I would appeal to anyone with information to contact the police.”’

    4
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    Mute Tír Eoghain Gael
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    Nov 14th 2017, 3:19 PM

    @Nick Allen:

    https://www.theguardian.com/uk-news/2017/jan/13/belfast-couple-shot-in-legs-while-protecting-son-paramilitaries
    ‘Sinn Féin’s west Belfast assembly member, Pat Sheehan, condemned the shooting…”whatever the motivation for this shooting, there is absolutely no justification for it,”’

    4
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    Mute For Connolly
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    Nov 14th 2017, 11:46 AM

    Vile “republican” terrorists unfortunately remain a permanent feature of this country

    21
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    Mute Ruiri o connell
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    Nov 14th 2017, 12:22 PM

    @For Connolly: the area this happened in is actually a very Protestant area which leads to belief that this is a loyalist story not a republican story. Please stop being “wee todded”.

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    Mute Father Hody Commody
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    Nov 14th 2017, 12:58 PM

    @For Connolly: As do loyalists and an Irish government that will do as much as it can to return the North to the state it was in 25 years ago.

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    Mute John Dman
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    Nov 14th 2017, 1:13 PM

    @For Connolly: you would wonder why the Labour party made them a senator and introduced them into Irish parliament?

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    Mute Trevor Hayden
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    Nov 14th 2017, 11:21 AM

    B€€€ards should be publicly hung if caught, send out a warning to any other fools that think they are “hard men”

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    Mute John Barnes
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    Nov 14th 2017, 2:08 PM

    Slightly off the point but is ‘commuuunity’ or ‘davastaytan’ the only f’in words northies know? Never met 1 that did not either of these words in any conversation

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    Mute Leadóg
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    Nov 14th 2017, 2:21 PM

    @John Barnes: just like ” stooreee bud”is the only thing dub’s say or” top o the morning ” for all Irish people.

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    Mute John Barnes
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    Nov 14th 2017, 2:42 PM

    @Leadóg: never heard an Irish person say top o the morning

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    Mute Ryan
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    Nov 14th 2017, 2:48 PM

    @John Barnes: “sityaation ” …

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    Mute John Barnes
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    Nov 14th 2017, 2:51 PM

    @Ryan: the sityaation hare in thas cammuunaty is devastaytan

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    Mute Eoin Kenny
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    Nov 14th 2017, 1:08 PM

    Very sad

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    Mute Bryan Kelly
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    Nov 14th 2017, 3:58 PM

    Thanks monoculturalism

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