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File photo. The report authors are urging testing for dementia at an earlier stage than the rest of the population. Shutterstock/Dan Kosmayer

In a study of older Irish women with Down Syndrome, almost all had dementia 20 years later

At the end of the long-term study, 97.4% of participants had developed dementia.

A LONG-TERM study on adults with Down Syndrome in Ireland has found that people with this condition are at a much higher risk of developing dementia than the general population.

The study followed 77 women with Down Syndrome over the age of 35 for 20 years. In that time 97.4% of the women assessed had developed dementia. The prevalence rates of dementia in the general population over the age of 65 ranges between 5% and 7%.

The average age that the women were diagnosed with dementia was 55 years, which is almost four years later than the international average.

The report’s authors have urged the government to introduce measures to ensure that services and care for older people with Down Syndrome are reflective of the points highlighted in their research.

Much higher risk

The researchers calculated the risk of people with Down Syndrome developing dementia at different ages.

At age 50, there was a 23.4% risk. This rises to 45% by age 55, and then to 88% by the age of 65.

The researchers also said that the average length of survival for dementia sufferers with Down Syndrome was seven years, rather than three to five as previously thought.

“This new data has major implications from a care and resource perspective,” they said.

Furthermore, almost 80% of people with Down Syndrome and dementia will develop new onset epilepsy.

Policy changes

The fact that dementia diagnoses are made later in Ireland than the international average means that many are only diagnosed at a very advanced stage, according to lead study author Professor Mary McCarron.

Professor McCarron reiterated a number of measures that are needed to offer care and support for people with Down Syndrome and their families as they get older, having addressed TDs and Senators on the matter recently.

She urged introducing dementia assessments for people with Down Syndrome at a stage far earlier than is usual for the general population.

McCarron also called for the establishment of specialist memory clinics, with trained and experienced staff, to offer advice and support to patients and their families.

A greater number of experts trained to specifically work with this population, and enhanced education programmes for healthcare professionals in diagnosing early onset dementia would also be welcome.

McCarron said: “We now have the statistics for Ireland, and clearly radical changes need to be made in order to respond and address the needs of this often vulnerable group of people to help diagnose, support, treat and help prevent dementia.

We need to support people with Down syndrome and dementia to live in the home of their choice with their family or friends for as long as possible.  Supports should include appropriate dementia specific respite services for family and/or peers in group homes.

This study from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing was published in the Journal of Intellectual Disability Research.

Read: HSE ordered to pay paramedic €52,000 after discrimination over care of daughter who has Down Syndrome

Read: Study finds 99% of former NFL players have brain disease caused by blows to the head

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6 Comments
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    Mute Dáithí Ó Raghallaigh
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    May 22nd 2017, 5:45 PM

    Theresa May and the British Media reacting to a narrowing lead in the polls, it gets dirthy from here on in. Hope the voters can see trough this crap………

    347
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    Mute Alan M
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    May 22nd 2017, 5:48 PM

    @Dáithí Ó Raghallaigh: Yep, latest polls have halved the early lead. You’re right, too – this will get a lot dirtier before polling day.

    137
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    Mute Fank Pulman
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    May 22nd 2017, 5:55 PM

    @Alan M: Yes chaps – but the election is in another country, where the electorate’s sole interest in this island – is to rid the UK exchequer of the £10 billion drain that NI is, every year…

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    Mute Pete Rossiter
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    May 22nd 2017, 6:10 PM

    @Fank Pulman: £2.5 Billion is the actual defecit.

    37
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    Mute Fank Pulman
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    May 22nd 2017, 6:13 PM

    @Pete Rossiter: No…the net deficit is c€1 a month. Google is your friend¡

    12
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    Mute Noirin Kavanagh
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    May 22nd 2017, 7:18 PM

    @booby sandwiches: with your ridiculous name and the nonsense you spew out, I hope someone is paying you for your time trolling…..

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    Mute Just Me
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    May 22nd 2017, 7:22 PM

    @Noirin Kavanagh: He’s had about 20 different names on here. I don’t think he’s the full shilling. He’l soon be banned again.

    43
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    Mute Anne Warren
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    May 22nd 2017, 7:26 PM

    @Dáithí Ó Raghallaigh: is Theresa may throwing the election?

    https://eurofree3.wordpress.com/2017/05/21/corbyn-for-pm-its-a-great-british-thing/

    4
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    Mute Eamonn coughlan
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    May 22nd 2017, 8:29 PM

    @Fank Pulman: where’s Paul foot you haven’t signed in as him in a while since you got caught out with your multiple accounts

    17
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    Mute Brendan McLaughlin
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    May 22nd 2017, 5:47 PM

    Love him or hate him, he has always been a principled and dignified public servant.
    Honesty and integrity for 50 years cannot be attacked so the Tory machine and its printing presses and tv studios try distraction tactics.
    Professional liars and the bottom- feeders in the media cannot be steadied with shame. A conscience is required in order to feel shame.

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    Mute Brendan McGill
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    May 22nd 2017, 6:01 PM

    @Brendan McLaughlin: Pretty much bang on.

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    Mute Just Me
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    May 22nd 2017, 6:31 PM

    @Brendan McLaughlin: Reminds one of the relationship of FG and FF with our one dimensional media who lie, spread fake news against any opposition trying to challenge them. Well worn tactic shout the loudest, and rally the trolls on social media.

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    Mute joe o hare
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    May 22nd 2017, 6:33 PM

    @booby sandwiches: The only hard border will be the one between Scotland and england, in fact a prosperous 32 county Irish republic may have to introduce a visa system to prevent people fleeing, a derelict, dysfunctional england and Wales and looking to set up hope in the emerald isle.
    Indeed in the future we may have a united kingdom of great Ireland Scotland and wales.

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    Mute Fank Pulman
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    May 22nd 2017, 7:01 PM

    @joe o hare: The UK would have a party in every town if we took on NI and it’s £12 million annual cost; they have zero interest in the place which has civil servants making up 29% of it’s workforce. Sadly – with a €200+ National Debt – we couldn’t afford it.

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    Mute Fank Pulman
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    May 22nd 2017, 7:04 PM

    @Fank Pulman: And…the UK is the 5th largest economy on earth in terms of GDP etc. Do we even make the top 50!¡¿?

    5
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    Mute booby sandwiches
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    May 22nd 2017, 7:06 PM

    @Just Me: you probably wouldnt consider yourself a troll? PMSL

    5
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    Mute booby sandwiches
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    May 22nd 2017, 7:12 PM

    @Fank Pulman: the border will give me great joy :)
    #karma

    1
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    Mute Just Me
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    May 22nd 2017, 7:32 PM

    @booby sandwiches: No, I leave that to you with your vast experience.

    14
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    Mute kevin
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    May 22nd 2017, 8:02 PM

    @joe o hare: no thanks. We’re Irish not Welsh or Scottish.

    The dal riada is ancient history…

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    Mute TehJurolan
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    May 23rd 2017, 1:11 AM

    @joe o hare: you should add “brained” to your name.

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    Mute Fank Pulman
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    May 22nd 2017, 5:43 PM

    Right side of history¡ Like Jorry – who never joined the IRA….

    117
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    Mute Skinnerbot
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    May 22nd 2017, 5:54 PM

    @Fank Pulman: I’m not sure if you agree or disagree with the article?

    67
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    Mute Negan
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    May 22nd 2017, 6:16 PM

    @booby sandwiches: so you don’t support freedom fighters?

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    Mute Fank Pulman
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    May 22nd 2017, 6:18 PM

    @Negan: I support the disappeared – do you not¿¡

    29
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    Mute joe o hare
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    May 22nd 2017, 6:42 PM

    @Fank Pulman: Presume you are also supporting
    John mahon 16
    Michael Connors 14
    Sean o Riordan 13
    Francis rowntree 11
    Their families will appreciate your support.

    39
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    Mute joe o hare
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    May 22nd 2017, 6:45 PM

    @Fank Pulman: in what way do you support them
    Are you asking the Irish government to question the britshit governments use of vulnerable members of the nationalist community as informers and what threat did they imply to achieve this.

    33
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    Mute Fank Pulman
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    May 22nd 2017, 6:55 PM

    @joe o hare: I support the need of the families of the disappeared to be given closure – and for them to be allowed to bury their family members. It is sad that some don’t share this basic right. Changing the subject achieves nothing¡

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    Mute booby sandwiches
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    May 22nd 2017, 7:05 PM

    @Negan: ISIS would consider themselves as freedom fighters, do you support them also? have you any morals at all?

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    Mute Just Me
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    May 22nd 2017, 7:27 PM

    @Fank Pulman: Are you now Booby, you’re answering for him. So along with Fank Pulman. Pendragon 917, Paul Foot and now Booby, how many accounts have you got.

    29
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    Mute Brendan McGill
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    May 22nd 2017, 7:33 PM

    @Fank Pulman: You’re the one that changed the subject, considering the article has nothing really to do with the disappeared.

    27
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    Mute Living The Laws
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    May 22nd 2017, 8:37 PM

    @booby sandwiches:

    there are freedom fighters everywhere in one guise or other. this years freedom fighters are next years terrorists and the next years government. forget labeling things. look for the motive of their cause and then judge their morals.

    21
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    Mute Larry Kavanagh
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    May 23rd 2017, 1:11 AM

    @booby sandwiches: ISIS are anything but freedom fighters, there is absolutely no comparison.

    2
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    Mute Honeybadger197
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    May 22nd 2017, 6:18 PM

    What mandate was he respecting when was attending rallies for jailed IRA terrorists and their dead “martyrs”? The IRA had no mandate from anyone, SF had little electoral clout before their dear friends agreed to a ceasefire. SF got 13.8% of the vote last time out. It was in low single figures during the troubles north and south. The right side of history starts with the likes of Hume and Mallon, others merely followed when their gun dreams proved fruitless.

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    Mute Honeybadger197
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    May 22nd 2017, 6:48 PM

    @joe o hare: So a democratic mandate is irrelevant? QED.

    15
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    Mute Honeybadger197
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    May 22nd 2017, 7:04 PM

    @Honeybadger197: disappointed “they” removed Joes comment. It laid bare the grassroots apathy towards democracy. So it goes…

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    Mute Dolly White
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    May 22nd 2017, 8:52 PM

    @Honeybadger197: Spot on

    2
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    Mute joe o hare
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    May 22nd 2017, 10:10 PM

    @Honeybadger197: you are forgetting that bobby sands topped the poll in elections as a member of the IRA.

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    Mute joe o hare
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    May 22nd 2017, 10:12 PM

    @Honeybadger197: it would be hard to get a mandate in a falsely created state that was engineered to give a foreign invader an electoral majority. Lots of people who voted SDLP also supported the IRA.

    11
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    Mute Honeybadger197
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    May 23rd 2017, 6:55 AM

    @joe o hare: Can you shed some light on why Gerry tried to make himself a beneficiary of Sands writings etc? Why are Sands relatives in dispute with the bobby sands trust? Why do they refuse to allow Sands son access to physical copies of his fathers writings? Lastly, if youre going to mention Sands, why did Gerry veto a deal from the British that the hungerstrikers had accepted?

    2
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    Mute Ben McArthur
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    May 22nd 2017, 5:44 PM

    Corbyn must be so honoured to be added to the list of Sinn Fein friends like his hero Castro.

    74
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    Mute Stephen
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    May 22nd 2017, 5:47 PM

    Let’s have an unbiased opinion on this #EoghanHarris

    37
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    Mute Brendan McGill
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    May 22nd 2017, 6:01 PM

    @Stephen: Hahahaha

    29
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    Mute Just Me
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    May 22nd 2017, 6:39 PM

    @Steph: Or Kevin Myers. Perhaps dig up Conor Cruise O’Brien, now that would be impartiality, not.

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    Mute Padraic Courtney
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    May 23rd 2017, 12:30 AM

    @Just Me: it gets better. They dragged Sean O’Callaghan out of obscurity and gave him the front page of the Sun.

    3
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    Mute Eoin Mulhern
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    May 22nd 2017, 6:46 PM

    So many trolls on this comment section.

    29
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    Mute booby sandwiches
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    May 22nd 2017, 7:09 PM

    @Eoin Mulhern: shinner trolls are busy trying to rewrite history, and they wonder why they are wallowing on 13% PMSL

    37
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    Mute Bull Spite
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    May 22nd 2017, 8:46 PM

    @Just Me: How stupid can replies get! Try to argue your point and stop insults. It makes you look foolish.

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    Mute Dolly White
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    May 22nd 2017, 8:55 PM

    @booby sandwiches: Spot on. Only recently joined social media and cannot believe the number of Provo trolls stalking and bullying decent democrats off the Comments page and Twitter. About 4 Provo trolls to 1 decent democrat. Scary

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    Mute Living The Laws
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    May 22nd 2017, 9:09 PM

    @Dolly White: anyone who doesn’t agree with what you think is a provo troll?

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    Mute booby sandwiches
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    May 22nd 2017, 7:10 PM

    its good to see failures like SF/IRA and Corbyn cosy up. rotten to the core the lot of them

    29
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    Mute Tom the Bomb
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    May 22nd 2017, 10:38 PM

    He DID condemn IRA bombings. The widely circulated clip of the interview conveniently cuts off the bit where he said “I condemn all bombing by both the loyalists and the IRA,” in an effort by the right wing press to smear him.

    21
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    Mute Harry Whitehead
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    May 22nd 2017, 10:51 PM

    @Tom the Bomb: It’s David Cameron’s “Corbyn called Osama bin Laden’s death a tragedy” out-of-context smear story all over again. Lynton Crosby is probably masturbating furiously right now.

    3
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    Mute Michael Ryan
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    May 22nd 2017, 7:01 PM

    For Corbyn every radical terrorist & tyrant opposed to the west is either excused or backed by him over his long political career. For Corbyn “the enemy of my enemy is my friend”. From his support for the IRA, hamas & hezbollah to his regular appearances on Iran state English language propaganda channel & Putin’s English language propaganda channel RT before he became labour leader.

    25
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    Mute booby sandwiches
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    May 22nd 2017, 7:14 PM

    @Michael Ryan: evil associates with evil, corbyn and SF/IRA are welcome to each other, both utter failures PMSL

    27
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    Mute Daffy the Bear
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    May 22nd 2017, 7:51 PM

    @booby sandwiches: havin a lot of trouble holdin your piss this evenin?

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    Mute Living The Laws
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    May 22nd 2017, 8:59 PM

    @Michael Ryan: i’m confused. do you actually believe that to be a good or bad?

    4
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    Mute eastsmer #IRExit
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    May 22nd 2017, 11:42 PM

    @booby sandwiches: You’re like a bee attracted to nectar, give it up Dane, seek the help you urgently need.

    4
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    Mute Old Gordon
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    May 22nd 2017, 6:39 PM

    BREAKING NEWS: Jeremy Corbyn condemns SF, claims he’s always been on the Left side of history.

    8
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    Mute Harry Whitehead
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    May 22nd 2017, 10:49 PM

    The UK Labour leader has been slandered for failing to condemn the IRA alone without condemning anyone else.” There, fixed the sub heading for you.

    5
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