DYLAN FINGLAS IS two years old. His parents say he is always happy, laughing, affectionate and loves to play.
At 18 months, he was diagnosed with a rare and fatal genetic condition, multiple sulfatase deficiency (MSD).
As his mother Michelle explains in the video, children with MSD rarely see their tenth birthday.
He will lose the ability to sit and stand on his own, he will no longer be able to feed himself, all of his bodily functions will start to shut down and he will eventually die.
The toddler’s father Alan said there is an existing cure that can help but they need funds to push for drugs to be developed for a human clinical trial in Ireland.
“I don’t want to have to say goodbye to my little boy,” the boy’s distraught father said.
Dylan’s parents have stressed that none of the funds raised will be spent on personal medical expenses for their child or any other individuals. All funds will go towards the research needed to push through a cure for Dylan and children like him.
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