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David Nolan and his son Ollie.

'Our lives are in limbo': Parents of vulnerable toddler say family carers should be moved up vaccine priority list

Health officials and the minister have said it is unlikely family carers will be moved up the list.

THERE HAVE BEEN calls for family carers to be designated as key workers so they can receive their vaccination earlier on in the roll-out.

Health officials and the government have indicated a change in the scheduling for this group is unlikely. This week they pointed out that many of the people being cared for in their homes by family members will receive their vaccination in the next stage of the roll-out, which covers those aged over 70, and will therefore be protected.

This has offered little comfort to parents like David Nolan, who cares for his three-year-old son Ollie. Ollie has Type 1 diabetes and requires specific and dedicated care to avoid serious illness.

“He’s nearly a year diagnosed, so the Covid year has basically been the diabetes year for our family,” Nolan told TheJournal.ie. “I feel ignorant looking back at how I used to think about diabetes, I never realised the volume of work that goes into managing Type 1.

“His blood glucose needs to be kept in a certain range – if it goes low he will faint and could go into a coma. If he has too much insulin he could be in that situation too.

“We have to keep on top of his blood sugar, carbohydrate control, his insulin. We have an insulin pump and we have to change his cannula (a tube inserted into the body to administer medication), we have to measure his medicine and actually set his dose ourselves depending on his diet and current activity levels.”

There are two main concerns for Nolan and his wife; the first is that Ollie could contract the virus and become very ill, the second is that they, his carers, could become sick with it and therefore unable to provide his care.

“If he gets sick it’s not necessarily Covid that will be the problem, diabetes is the problem. He was in hospital with a head cold previously because his blood sugar became so erratic.

“If he has it, he’s at risk of needing treatment in a clinical setting. And if we had it and were sick with it, Ollie would have to enter a clinical setting because of the demands of his care.

“If there is even one decimal place in error with his insulin it could put him in a coma. The way I see it is that there are lots of reasons to vaccinate carers, and one is to keep the vulnerable children we care for out of hospital. He can’t get the vaccine, I want to get it so I can protect him from Covid.”

Speaking in the Dáil this week, Health Minister Stephen Donnelly said “it is not my decision but a clinical decision based on expert advice”.

Donnelly said family carers will be “covered under the various categories into which they might fall”. 

“For what it may be worth, my view is that an even bigger priority are the people being cared for. In many cases, the vaccinations will begin in mid-February for those aged over 70,” he said.

“It is not everyone, obviously. Some people who are being cared for will have underlying conditions and there has been a lot of discussion on that.”

The issue was also raised at the HSE weekly press briefing, with officials stating that the order in which various groups receive their vaccines is unlikely to significantly change.

CEO Paul Reid said there are “many justifiable cases” for vaccination right now and there is a limited supply of doses.

“Frankly what I’m trying to do is manage expectations,” he said, adding that every time the health service indicates there could be small movement on it “there is a massive swell of demand for various understandable reasons for different workforces”.

He said it will not be a decision by the HSE, it will be for the National Immunisation Advisory Council (NIAC) to advise any changes to the sequencing.

“It will be impossible to meet all of those justifications.”

Dr Anne O’Connor, Chief Operations Officer, said she wanted to make it clear that the health services “would be lost without family carers”.

They do a phenomenal job and we do know that in terms of caring for their family members. I wouldn’t want anyone to think it’s not about recognising what family carers do, it’s just in the context of all of the competing demands and the available vaccine supply – that is the limiter.

Currently David Nolan will likely not receive his vaccine until August or September as he is in the second-last category, those aged 18-54 who did not have access to the vaccine in prior phases.

Due to their occupations and ages, everyone else in the family, including his wife and their parents, will get their vaccinations before him, despite the fact that he is Ollie’s registered carer. 

It is likely that Ollie will not receive a vaccine due to his age and his medical condition. 

Nolan is calling for family carers to be classed as ‘essential workers’, the sixth group on the vaccine schedule. 

He said that while many people in the country have been able to return to some of their normal activities when restrictions were lifted, his family has been cocooning for almost an entire year.

“We have a new playground that opened up recently in the area and we don’t go there. Ollie is three and he needs to be able to develop his social skills, visit his cousins, go and play with his friends, learn to converse with people his own age. He can’t do that,” he said.

“I feel like we’ve been left behind, our lives are in limbo.

“And we can’t stay completely out of the community either. We have to bring our daughter to school, our son has to go to his HSE clinics, to his GP for check-ups, we have to get his medication from the chemist. All of his services are in the community and often in clinical settings.”

Nolan said Ollie has been a “hero” in the way he responded to his diagnosis almost a year ago.

“The last time he was in the hospital he did his own pin prick. He’s just gone three and he was offering up his blood to the nurse. It’s the kids who give the parents strength, he is my little hero.

“When we used to change his cannula he would ball crying and I kept telling him he was so brave and now we’re at the stage where he’s just so good about it. He’s so brave. He shouldn’t have to be that way.

“This for me isn’t about wanting to jump the queue. I need the vaccine so I can keep my shoulder to the wheel, keep taking care of him and keep him safe.

“I think all of those working in clinical settings should take absolute priority, I’m not saying I should be first but I’m not okay with being last.”

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    Mute Beano
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    Sep 18th 2015, 6:53 AM

    If people want to pay €125 to raise money for some senator who’s done nothing of note to date then more fool them

    581
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    Mute Peadar Ó Gréacháin
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    Sep 18th 2015, 11:20 AM

    I was thinking of charging €100 and was told I would be in the tuppence ha’penny place, that will give you an idea of the gap between the well off and the less well off, there are family’s living on less per week after the bills are paid,

    114
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    Mute Michael Sands
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    Sep 18th 2015, 11:59 AM

    She has, she’s had a story written about her lol.

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    Mute M Bowe
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    Sep 18th 2015, 1:28 PM

    there are young adults trying to live on this per week before they buy a slice of bread…

    40
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    Mute ciaran
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    Sep 18th 2015, 4:47 PM

    Is that after tax??

    1
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    Mute Martin Mc Hugh
    Favourite Martin Mc Hugh
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    Sep 18th 2015, 6:22 AM

    Another ridiculous article by the journal. Firstly, who cares what she charges, she isn’t forcing anyone to pay and secondly senators do not have constituencies, they are not TDs, get your facts right

    492
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    Mute Myles
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    Sep 18th 2015, 7:07 AM

    Worse still is when Senators talk about “their constituency”

    202
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    Mute Grigori Rasputin
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    Sep 18th 2015, 7:14 AM

    Well, the fundraiser is for her general election campaign, so I assume that’s the context in which the article talks about her constituency – the one she’ll be standing in.

    That said, the notion that she or her supporters can’t shouldn’t visit a restaurant outside of that small geographical area is farcical.

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    Mute james comiskey
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    Sep 18th 2015, 8:30 AM

    she is running in the generals so therefore she does have a constituency . I thought that was quite clear in the article

    33
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    Mute Al Fonso
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    Sep 18th 2015, 9:05 AM

    Wow did you post a comment about someone not reading the article! How brave!

    17
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    Mute Martin Mc Hugh
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    Sep 18th 2015, 9:15 AM

    Must have missed the news that a general election was called

    23
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    Mute Grigori Rasputin
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    Sep 18th 2015, 10:51 AM

    Since the last GE was in February 2011, and the Dail sits for a maximum 5 year term, legally the next GE has to be before the 4th of April 2016.

    So the fact that a GE hasn’t been called is moot. Everyone knows that one is coming up within the next 5 months, so naturally they’re preparing for it.

    12
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    Mute Tom Kelly
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    Sep 18th 2015, 2:01 PM

    “Another ridiculous article” yet they keep coming back.

    6
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    Mute Simon Williamson
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    Sep 18th 2015, 6:43 AM

    You’re starting to make The Sun look intellectual.

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    Mute Michael O' Riordan
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    Sep 18th 2015, 7:36 AM

    Best advertisement for a function……ever!

    207
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    Mute Dermot Ryan
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    Sep 18th 2015, 7:36 AM

    such poor journalism. lots of questions about fundraising for politicians, should it be publicly funded? should we increase the transparency etc? real issues for debate. but to make the story the fact that she is having it in a city centre restaurant outside of her constituency. “Senator holds fundraiser in location convenient to supporters”… shock horror…

    185
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    Mute MuckyMoo
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    Sep 18th 2015, 11:01 AM

    haha that’s our journal for ya

    20
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    Mute Crocodylus Pontifex
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    Sep 18th 2015, 6:41 AM

    Seems normal in all respects. Why are you picking on this candidate?

    159
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    Mute Martin Byrne
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    Sep 18th 2015, 7:04 AM

    The journal and its everlasting FG love fest knows no bounds.

    128
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    Mute Wexford pikeman
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    Sep 18th 2015, 6:42 AM

    Fine Gale out of touch ? Never ! Ha.

    121
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    Mute John Donnelly
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    Sep 18th 2015, 6:24 AM

    Fuc*king gangsters!

    111
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    Mute MrBuzzB
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    Sep 18th 2015, 6:57 AM

    Not my cup of tea….but whats wrong with it?

    95
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    Mute Mary Murphy
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    Sep 18th 2015, 7:48 AM

    Nice of her not to invite those that can’t afford it

    81
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    Mute Richard Cheney
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    Sep 18th 2015, 7:43 AM

    Champagne w@nkers

    73
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    Mute Willy
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    Sep 18th 2015, 8:19 AM

    She said I did not invite anyone who could not afford to come! Elitist bandwagon that is FG just keeps on giving. The gap grows larger than ever…

    73
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    Mute Cheeky Bums
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    Sep 18th 2015, 7:25 AM

    No problem tucking in with those gnashers.

    61
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    Mute Integra-Ted
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    Sep 18th 2015, 8:33 AM

    Fine Gael, the party based on “based on principles of social justice and equality”, where for Fine Gael supporters €250 for a steak dinner in D4 is pocket change, while thousands of families have to feed 4 or more mouths for €250 a week!

    The Elites get richer, while the ordinary citizen gets poorer….

    “Qu’ils mangent de la brioche”

    56
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    Mute John Ward
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    Sep 18th 2015, 9:42 AM

    @Integra-Ted: Qu’ils mangent de la merde, salauds de riches!

    7
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    Mute Martin Bonner
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    Sep 18th 2015, 12:22 PM
    7
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    Mute Kay Keane
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    Sep 18th 2015, 8:41 AM

    All parties are allowed fundraise she says,not oi your AAA in DSW or Galway.Not a very level playing feild.

    44
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    Mute Alan Scott
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    Sep 18th 2015, 8:49 AM

    Some of the water protesters should book a table to eat.

    25
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    Mute Integra-Ted
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    Sep 18th 2015, 8:51 AM

    Paul Murphy will be holding a lunch fundraiser at KFC Newry, bring some sterling… Shuussshhh!

    21
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    Mute Alan Scott
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    Sep 18th 2015, 8:47 AM

    No doubt the rich will be wanting some promises for the price of the dinner

    42
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    Mute Pat Kelly
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    Sep 18th 2015, 8:24 AM

    Some piece of journalism. Very important work.

    37
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    Mute Iona Cult
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    Sep 18th 2015, 12:24 PM

    Pulitzer Prize winning.

    “Journalism is printing what someone else does not want printed: everything else is public relations.” Orwell

    13
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    Mute Deirdre O'Donovan
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    Sep 18th 2015, 9:59 AM

    Two words “Political Policing”, Paul Murphy cant fundraise but these people can, wake up you bloody sheep and get rid of these parasites.

    30
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    Mute Paul Roche
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    Sep 18th 2015, 9:44 AM

    Did she need a permit, and if so which Garda Superintendent signed off on it?

    26
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    Mute Deirdre O'Donovan
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    Sep 18th 2015, 10:06 AM

    Two words “Political Policing”, Paul Murphy, a man who is actually trying to do something for this country is not allowed to fundraise but these people are, wake up you sheep and rid our Nation of these parasites.

    26
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    Mute TommyJung
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    Sep 18th 2015, 8:28 AM

    Beware a woman with a haughty laugh.

    25
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    Mute Eamon Mag Uidhir
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    Sep 18th 2015, 9:43 AM

    Silly headline: senators doen’t have constituencies..

    14
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    Mute Micheal S. O' Ceilleachair
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    Sep 18th 2015, 10:00 AM

    Catherine No one meets Michael No one(n) for €125 dinner. No one came!!!

    11
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    Mute Dave Murray
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    Sep 18th 2015, 9:24 AM

    I’m about as cynical as it gets when it comes to politics …but I really can’t see any problem with this.

    11
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    Mute John Ward
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    Sep 18th 2015, 9:36 AM

    She’s no one to bother about!

    11
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    Mute Stephen McConnell
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    Sep 18th 2015, 1:39 PM

    I’m sorry to see The Journal moving in this direction. I thought you were better than sensationalist non-stories. How did this even get past editorial?

    8
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    Mute Rashers Tierney
    Favourite Rashers Tierney
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    Sep 18th 2015, 2:39 PM

    Surely, you jest Stephen?

    6
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    Mute willr
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    Sep 18th 2015, 2:20 PM

    Ah, really. Fundraising for a constituency that at best will return just 1 FG seat. Good luck. Calculating an average based on the last 6 opinion polls FG will be struggling and lucky to get 40 seats. 45 maximum. They are currently holding 68 seats in the Dail. They will be losing 23 to 28 seats based on the last 6 month average in polls.

    7
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    Mute Rashers Tierney
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    Sep 18th 2015, 2:38 PM

    Great God almighty – what a kip of a country. “come and eat over priced meat and give me money – as a bonus, Baldy Noonan the Bondholder will be there to say a few words”. Gimmee strength.

    7
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    Mute Garda Topaz
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    Sep 18th 2015, 1:28 PM

    Joan Burton opening soup kitchens and they like like this at the top pigs

    6
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    Mute Michael Sands
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    Sep 18th 2015, 12:00 PM

    Is that a form of lobbying really?

    5
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    Mute SCO Electrical
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    Sep 18th 2015, 12:57 PM

    Ya’d nearly buy a full cow for that http://www.donedeal.ie/view/9974939

    5
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    Mute Martin Hayes
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    Sep 18th 2015, 11:57 AM

    Jaysus, you won’t be able to get on a 38a that night.

    4
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    Mute neuromancer
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    Sep 18th 2015, 9:15 PM

    Only people who pay for this crap, are people who expect favours later down the road.

    3
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    Mute david athenry
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    Sep 18th 2015, 10:46 PM

    If they make the speeches beef oar the meal, people will lose their appetite completely.

    If they do the speech therapy afterwards, then there is great danger of losing the load,

    As the spew o’ the minister gets a sympathy vote from they who couldn’t stomach both the sinister minister

    and the exorbidantly priced food.

    1
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    Mute Larry Rawson
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    Sep 18th 2015, 8:55 AM

    Is she looking for a Donatation
    Or a Donation to pay for a decent proof reader
    I’m free !

    1
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