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YESTERDAY, THE HSE apologised after a rapid review identified over 4,000 cases where women who’d had smear tests weren’t told of their results through a combination of IT issues and human error.
In 873 of these cases, no letters about test results were issued to the women or their GPs. In the other 3,200 cases the results were issued to GPs but not to the women involved. The HSE stressed yesterday that the women affected in these cases were at “low clinical risk”.
He said that perhaps the “most significant” impact from the IT problem was that many women waiting for test results received no communication for a period of six months.
Professor MacCraith used the story of one woman – named Sharon – to detail how women who followed up to try to receive the results of their cervical screening were denied information, and how the issue could have been resolved a lot sooner.
Professor Brian MacCraith delivering the results of the rapid review yesterday Eamonn Farrell / RollingNews.ie
Eamonn Farrell / RollingNews.ie / RollingNews.ie
Backlog
Sharon was diagnosed with pre-cancerous cells 10 years ago.
She’d had annual screening since then, and had previously received the results within six weeks of the sample being taken.
On 3 December 2018, she had a smear test. She didn’t receive her results within six weeks, and followed up with her GP. Sharon was told the current waiting time was up to 14 weeks “due to issues over the past year”. (You can read more on these well-publicised issues here).
On 26 March 2019 – a full 16 weeks after her smear test – she called the CervicalCheck helpline and was told her results weren’t available. This was escalated to a CervicalCheck doctor, but he couldn’t tell her where her results were when he called her back on 3 April.
Her sample was transferred to Quest Diagnostics’s Chantilly laboratory in the US on 26 March. The review later found that due diligence and risk management hadn’t been performed on this facility operated by Quest – the company that tests smear samples on behalf of the HSE.
This was done to prevent the expiration of her sample. If it expired, it’d mean she’d have to get a smear test done again.
The test was carried out on 27 March at the lab but the test result report which is sent to GPs was not created.
Frustration
Still in the dark on her results, Sharon emailed the Department of Health on 3 April detailing what had happened so far. In the email, she said she was dissatisfied and said she’d bring her concerns to the media.
She received a reply that day from Minister Simon Harris’ private secretary acknowledging receipt and advising she’d receive a reply shortly.
Sharon emailed the minister’s office on 14 April, and again on 28 April. She said that her 5-month wait for these results was “totally unacceptable”.
On 30 April, she received a reply from Harris’ private secretary. It said: “The Minister acknowledges there has been an increase in the time taken to receive cervical smear test results, and would like to apologise for any distress this has caused you and assure you that this is a priority concern for his Department and the HSE.”
The private secretary also said actions were being taken to address the backlog but it would take some time to resolve. The letter also referenced how – in the context of cervical cancer normally developing over a period of 10-15 years – a delay in results “whilst undesirable is not necessarily dangerous and poses a very low risk”.
‘Insensitivity’
Sharon replied to this mail on 9 May, expressing dissatisfaction at its “insensitivity” to her condition in particular.
She contacted the department again on 16 May and 4 June as she still awaited her results.
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In a phone call with the department on 5 June, Sharon was asked to contact CervicalCheck directly. She did so, and was advised that the wait time for results is 33 weeks. She asked her case be escalated.
On the following day she received an email from Minister Harris’ private secretary in which the department official requested her personal details to that the department could engage directly with the National Screening Service on her behalf.
Sharon thanked the department official and said she felt the person she spoke to from CervicalCheck “didn’t care” about her situation.
With the case now escalated, the department contacted CervicalCheck which in turn contacted Quest Diagnostics to request an update on Sharon’s case.
On 17 June – almost three full months after the test was done – a result was obtained from her sample and a report was sent to her GP.
A week later, CervicalCheck told the department that Sharon’s test had been processed and the result was with her GP but due to an “IT issue” she hadn’t received a letter which would have been the normal process.
CervicalCheck then said it was addressing the problem and all affected women would be contacted. The follow-up queries to Sharon’s case had led to the discovery that around 800 women hadn’t been informed of their results in the normal manner.
Sharon was told her results by a CervicalCheck doctor on 26 June. When she asked why she hadn’t received a letter, she was told of an “IT issue”. She spoke to her GP the following day, and then contacted the CervicalCheck doctor to ask him to escalate the issue as her GP had no idea letters “were not being sent to women”.
‘Rude’
On 8 July, Sharon phoned the Department of Health and raised a number of issues, including the delay in receiving her results, the non-issuing of letters to women and the “rude” encounter with the CervicalCheck helpline staff member.
The department official said they would follow up and have an update for Sharon the next day. That afternoon, the department sought an urgent follow up from CervicalCheck on these matters.
Also on 8 July, Sharon contacted RTÉ’s health correspondent Fergal Bowers to advise him of these matters.
The report from Professor MacCraith notes different versions offered by Sharon and the Department of Health official as to what happened next.
According to Sharon, she received a phone call at 5.30pm on 9 July from the department official and was told the HSE’s report was back and was awaiting sign off from the “department head”.
She said she asked if Minister Harris was aware of the content of the report, and was told he’d been fully briefed.
According to the department official, it is “likely” Sharon was told the current status of the report and that it awaited sign off from the Head of the National Screening Service within the HSE rather than anyone at the Department of Health.
“No report from the HSE would ever go to the Department Head for sign off. In any event, we don’t use that terminology,” the official said.
In any case, RTÉ’s Fergal Bowers began to make enquiries to CervicalCheck and the Department of Health on these matters on 10 July.
RTÉ ran the story on the Six One News the following day.
On 26 July, Sharon received a letter from CervicalCheck. The letter did not note any abnormalities and she was was recommended a three-year recall and annual check ups.
When asked to summarise the experience, she said:
There is an absence of customer service from CervicalCheck. If I had been treated with respect, this may not have evolved like this. And also, if the Department of Health had responded to my email of 3 April, things would have been discovered earlier.
The CEO of the HSE Paul Reid told reporters yesterday that some of the women affected by this weren’t even aware yet, and would be contacted in the coming weeks.
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whenever there’s a viable flight option from Shannon I will always choose to fly from Shannon, heck I’ve gone via heathrow / paris to avoid flying from Dublin, and forget cork straight off.. the damn road to cork is a joke.
Shane there is no comparison between Dublin and Shannon Airports .
Shannon passenger numbers 2013 : 1.6 million
Dublin passenger numbers 2013 : 20.3 million.
They’re not comparable .
Have flown the last few times from Shannon to visit my in laws and its a doddle.. As someone who hates travel the most important thing is NO DELAYS and NO HASSLE.. Shannon will oblige..
Contrast that with a 16 hour delay while i was 5 months pregnant in Dublin in 2008, 6 hour delay in 2008..
16 hour delays can happen anywhere and are rarely the fault of the airport.
The big advantage for an airport like Cork or Shannon is that you pass through security, immigation etc. so much faster than in a bigger airport.
However, delays are where their downside kicks in. If you pick up a long delay, large airports usually have a number of facilities where you can amuse yourself. In a small airport, if you’re lucky, you might find a decent book in the bookshop.
Pierce.. I wouldnt agree with that.. Destination choice in Shannon was limited and now that they have added more flights thanks to Michael O Leary the Airport is more successful. People are voting with their feet.
Dublin will always be the busiest airport and thats ok cos its the capital city. Was only in Cork once and it was ok. The roads into and out of both are a bloody nightmare.
Shannon is doing a fine job of serving the West. Most of dont want to go to Dublin thank you very much. Too much bloody hassle.
I don’t know how you think that Dublin airport is responsible for a 16 hour delay or that Shannon airport would never experience flight delays! Yes, Shannon is faster to pass through and you’re less likely to experience small delays but major flight delays are nothing to do with the airport.
Delighted that Shannon is on the up and up no thanks to Fianna Fáil or unions. Twenty years ago Shannon Mail order had a turn over of 13 million pounds equal 20 million euro went out of business thru mis management and unions. Thanks to Michael O Leary I won’t have to drive 100 miles to Kerry , or Knock forget Dublin or Cork.
Thats the problem with Ireland. So many of you choose to live in sparsely populated areas. But want a service on your doorstep. Whether its airports, jobs or broadband. 6.3 million people on the island with 12 airports. Crazy.
New Zealand with a smaller population has 40 airports with services and 12 served by international connections.The Mid west and Shannon region is not a sparsely populated area either. As it stands 2million people are now within 90 mins drive of Shannon airport.
Bobby you understand that of the 4.6 million people living in the Republic of Ireland over 3million live outside the greater Dublin area. Those people are also paying their taxes and have as much right to services as those within a stones throw of the capital.
In all fairness New Zealand is rather big compared to our little burb but I get your point. BTW Shannon was always viable but suffered by being Dublins lacky…i.e. not allowed to compete. Now all bets are off. Go Shannon.
If the state no longer has direct ownership of the 2 companies, how will this affect Shannon Free Zone in the light of EU competition law?
Do companies there benefit from a tax free status and if so should they continue to benefit?
Exactly what I was thinking Paul when I read the article. The Shannon Development Company has been offering govt tax breaks and incentives to sources tenants and customers for their premises. Assuming those tax breaks are gone with govt ownership , SDC’s costs will jump immediately without the equivalent jump in Revenue.
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