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A file photo of a man with leprosy. Wong Maye-E/AP/Press Association Images

Leprosy victims crippled and suffering because of fear and prejudice

There are about 200,000 cases of leprosy reported every year – with the poorest countries worst affected.

LEPROSY IS OFTEN associated with Bible stories, a historic disease that has no place in the modern world.

However, leprosy is still a major problem, especially for the world’s poorest countries.

The chronic infection is transmitted most effectively in overcrowded conditions with poor sanitation. This means that it afflicts “the poorest” and “most vulnerable” in the world, says Dr Charles Kinkpe, chief medical officer at the Hospital of the Order of Malta (HOM) in Dakar, Senegal. The facility in the capital is at the forefront of the treatment of the disease and provides free care for those who can’t afford it.

Although considerable progress has been made in the fight against leprosy, it remains devastatingly present in more than 100 countries in Africa, America, Asia and the Pacific.

This weekend marks World Leprosy Day (held over 72 hours) which aims to raise awareness of the disease. Organisers hope to put out the message that leprosy, of which there were about 200,000 new cases in 2012, can be eradicated completely.

Organisations dealing with leprosy combat prejudice through education, hammering home the message that leprosy is not hereditary, nor a sign of a divine curse.

They point out that 95 per cent of humans are actually naturally immune to what campaigners call the world’s “least contagious communicable disease”.

Losing limbs

Multi-drug therapy (MDT), available free of charge through the World Health Organisation since the 1980s, consists of three antibiotics which together can cure patients in a few months.

But often those afflicted with leprosy do not know how to spot the signs early on and the disease takes an insidious hold, attacking nerve endings, destroying the ability to feel pain and injury.

“They burn themselves holding a hot pan or injure their feet walking on glass, for example, and do not realise,” Kinkpe told AFP.

Unable to sense these injuries, patients are susceptible to sores and infections which can eventually lead to the loss of fingers, hands, toes and feet, blindness and facial disfigurement.

“They often wait until the last minute to be seen,” laments the orthopaedic surgeon. Yet the bacterial illness can be easily cured before it causes serious damage.

“People with leprosy are isolated, kept remote – people don’t touch them. People say they are cursed,” says Diemg Mas, a 33-year-old teacher who has been receiving treatment for nearly two years.

Women sometimes hide the illness for fear of being rejected by their husbands.

Treated in 1976 and cured permanently, 60-year-old Moustapha Seck stayed at HOM and now manufactures orthopaedic shoes for those crippled by leprosy.

“When they put them on, first they walk, then they dance with joy,” he says proudly.

image

Image: Wong Maye-E/AP/Press Association Images

Another patient in the Senegal hospital is Modou Gaye. His right leg has been amputated below the knee.

Afflicted by recurrent yet mysterious sores, he had done the rounds of traditional practitioners and physicians who prescribed him various plants and potions but were unable to tell him he had leprosy.

“I didn’t know anything about the disease,” the 32-year-old street peddler from central Senegal tells AFP in his native language, Wolof.

Gaye’s story typifies the experience of many patients who one day notice an innocuous, painless blemish on the skin, and later discover they have leprosy, a condition which is easy to combat yet which continues to cripple and exclude millions worldwide.

But it was too late to save his right leg, the bone already too badly damaged.

In Ireland

There were two cases of leprosy reported in Ireland last year. In June 2013, the HSE confirmed the first known case for several decades. The sufferer was a man in his 30s, originally from South America. He did not contract the disease in the country but it was a recurrence of the condition he had in the past.

The HSE said the man had been treated in hospital in Dublin, and that there was no cause for public concern, as the condition is not highly contagious.

The bacterium that causes the condition multiplies so slowly that the first symptoms can often only appear around five years – and sometimes up to 20 years – after a person first comes into contact with it.

The second case, confirmed just a couple of months later, occurred in the north-east of the country. Again, it was a male foreign national who had contracted the infection abroad.

Additional reporting by Sinéad O’Carroll

Related: Second case of leprosy reported in Ireland

More: Ireland records first known case of leprosy in decades

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    Mute Pauric J O'Brien
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    Feb 19th 2023, 5:07 AM

    The HSE and, more particular, section 38 health care providers, don’t have a recruitment problem. They have a retention problem caused by a management problem.
    Stop treating the symptoms and treat the cause.

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    Mute thesaltyurchin
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    Feb 19th 2023, 10:16 AM

    @Pauric J O’Brien: ‘The public sector has it too nice!!’ They scream, ‘Reduce wages and benefits NOW!!’ they say… Irish people leave and the same lanterned-jawed m0r0ns start moaning about people moving here who are poor enough to need these jobs. We deserve everything we get.

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    Mute Frank Cauldhame
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    Feb 19th 2023, 2:16 PM

    @Pauric J O’Brien: Exactly. The staff turnover at private healthcare facilities is phenomenal and you only have to look at recruitment agencies online including indeed.ie to see the huge amount of vacancies in this sector especially for healthcare assistants.

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    Mute Skipper Mac
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    Feb 19th 2023, 8:35 AM

    Educating medical professionals in Ireland is heavily subsidised by the taxpayer. There should be a three year contractual requirement to work within the Irish health system before being released in order to recoup those costs. The other problem is universities cherry picking international students to fill spaces that Irish students could easily fill. My daughter is in her final year of a medical masters. Half of the students in her year are international, mostly Canadian. The university gets huge fees from international students.

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    Mute Barbara Stewart
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    Feb 19th 2023, 11:36 AM

    @Skipper Mac: Why should this be just medical professionals…..should it not be all professionals?

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    Mute Max Bailey
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    Feb 19th 2023, 12:01 PM

    @Skipper Mac: so all that will happen then is that people will choose to study abroad. Perhaps making it more appealing for medical professionals to stay in ireland by fixing the issues that are making them leave is a better idea.

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    Mute Colette Kearns
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    Feb 19th 2023, 12:42 AM

    Labour’s government started a mass exodus of our young doctor’s & nurses emigrating years ago & actually sent out letters to our young unemployed encouraging them to emigrate & now their begging out for staff.

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    Mute Don Hogan
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    Feb 19th 2023, 2:16 PM

    @Colette Kearns: There never has been a Labour government in Ireland. Get your facts straight before embarrassing yourself again.

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    Mute Colette Kearns
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    Feb 19th 2023, 3:26 PM

    @Don Hogan: Eh Joan Burton served as Tanaiste & leader of the Labour Party from 2014 to 2016 & it was herself whom sent out letters to people who were on the dole advising them to emigrate!!

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    Mute Frank Cauldhame
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    Feb 19th 2023, 7:45 PM

    @Colette Kearns: She didn’t like the fact that ordinary folk should own mobile phones either. Thankfully the likes of her and Regina Doherty were sacked by the electorate.

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    Mute Michael
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    Feb 19th 2023, 8:40 AM

    My two nieces, educated by the tax payer in Ireland university etc. both qualified nurses and flying out to Australia next week to work. Sorry we should contract them to do a minimum number of years in Ireland before they escape!

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    Mute Cian Martin
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    Feb 19th 2023, 9:51 AM

    @Michael: that’s not fixing the problem though. If anything it will deter people for entering nursing.

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    Mute thesaltyurchin
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    Feb 19th 2023, 10:18 AM

    @Michael: The problem is the endemic need to make things worse. As you’ve demonstrated here. Not fully your fault mind, we’re genetically pre-disposed.

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    Mute Spud Geshletter
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    Feb 19th 2023, 7:27 AM

    Our youngsters are leaving, worst than the eightys.

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    Mute David Van-Standen
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    Feb 19th 2023, 4:51 AM

    Deleting comments as usual…

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    Mute CryptoFactor ☘️
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    Feb 19th 2023, 7:24 AM

    Imagine going to another coutry and begging nurses to come here then telling them how great they’ll have it and when they get here they’ve nowhere to live, will pay high taxes, more for a car, more for insurance, more for road tax, more for electricity, WAY more for rent and get SFA for it. When their wages come in the nurses will see these deductions:
    PAYE (expected)
    PRSI (expected)
    USC 0.5% (WTF)
    USC 2% (WTF)
    USC 4.5% (WTF)
    ASC 1 3.33% (WTF)
    ASC 2 3.5% (WTF)
    Widows & Orphans (WTF)

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    Mute Mick McGuinness
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    Feb 19th 2023, 3:38 AM

    If that’s the case the HSE or Government should be reimbursing them their fares if working full time in the system. We need their skills big time never mind tax breaks for Multinationals or Vulture Fund’s.

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    Mute Redseat92
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    Feb 19th 2023, 12:30 PM

    Of course they are coming here as the wages are probably at least ten times higher,It is for the exact same reasons that our highly expensively trained professionals are going to Australia,Maybe two to three time the salary.Its very simple economics.I would earn at least triple my salary in Australia but I’m happy here and don’t want to go there.Should a nurse in Vietnam immediately down tools and demand ten times her salary as that what her Irish counterparts earn..??? Irish graduates should be contracted post training for a period of in order to contribute revenue towards their training.

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