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Vera Twomey.speaks to the media after her walk to the Dáil from Cork. Sam Boal/RollingNews.ie

'My daughter is seriously in need of this medication' - Vera Twomey is coming back to the Dáil

Twomey says nothing will happen until the law is changed.

MOTHER AND CAMPAIGNER Vera Twomey is to hold another protest outside the Dáil saying that “nothing else will do” except new legislation in the area.

Twomey, who has come to national prominence for her campaign against what she sees as the denial of treatment for her daughter Ava, says Irish laws makes doctors reluctant to apply for a special dispensation.

Ava suffers from a rare form of epilepsy called Dravet’s syndrome and her condition has been treated and has been dramatically improved by the use of cannabis-based CBD oil.

Vera Twomey wants her daughter to have access to a stronger product containing THC.

Tetrahydrocannabinol, or THC, is the substance in cannabis which gives the high but at low levels has been shown to be useful treating conditions such as Ava’s.

But since THC contains psychoactive elements, it falls under the Misuse of Drugs Act and is therefore, illegal.

“It’s just an extension of the CBD and, in the small percent that you require it, it’s a necessary addition to improve her situation and that’s really what our fight has always been about,” Twomey told TheJournal.ie.

As this explainer points out, the Minister for Health can grant a licence for access to cannabis for medical purposes in individual cases when an application is endorsed by a consultant “who is responsible for the management of the patient”.

TheJournal.ie / YouTube

In the specific case of Ava Twomey, her consultant has so far not sought this licence from Minister Simon Harris.

“The public neurologist says there was a lack of public evidence and that she couldn’t oversee Ava’s care because there’s a lack of expertise in the country,” Twomey says.

After her march to the Dáil, Vera Twomey said she was given a number of other options in order to obtain the treatment. These included travelling abroad.

“The second neurologist said she could send us to Canada to be seen by a neurologist there and they would be able to prescribe the medicinal cannabis for Ava but unfortunately Ava wouldn’t be stable enough to travel a long distance like that,” Twomey says.

She added that another neurologist in Cork was willing to oversee Ava’s THC-based treatment but wanted the support of a colleague in doing so, but this was not forthcoming.

Twomey says the problem is that the laws make doctors unwilling to look at new options.

That is why she says passing the Cannabis for Medicinal Use Regulation Bill is the only way forward.

The bill has passed the first stage of the Dáil but has since stalled.

“Nothing else will do, nothing else at this stage will do,” Twomey says.

I mean Paul, my husband and I, have exhausted all avenues and every suggestion or every attempt to make progress that we have tried has been blocked. And my daughter is in seriously in need of this medication.

Twomey’s protest will take place at the Dáil on Wednesday 29 March and will begin at 7pm with people assembly there from about 5pm.

Read: Vera Twomey urges Simon Harris to contact her after being given ‘irrelevant’ information to help Ava >

Read: Your 6 big questions about medicinal cannabis in Ireland… answered >

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21 Comments
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    Mute Dan The Man
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    Jul 2nd 2015, 3:13 PM

    That’s what one calls a jail sentence Take note judiciary in ireland

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    Mute little jim
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    Jul 2nd 2015, 3:17 PM

    They won’t take note, why would they?

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    Mute Diarmaid Mac Aonghusa
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    Jul 2nd 2015, 3:45 PM

    In Ireland the mandatory sentence for murder is “Life”. The judge has no power to give any other sentence. They are not allowed to put in minimum terms. The actual terms served for life sentances have been increasing over the years. It is up the Minister of Justice as to when they get released – the judiciary have no input in that.

    http://www.irishtimes.com/news/crime-and-law/why-does-life-now-mean-a-much-longer-sentence-1.1857296

    “In Ireland, a life sentence prisoner can expect to spend 22 years in prison. This is in marked contrast to the single-digit figures served by such offenders in the 1970s.

    Ireland has now surpassed England and Wales in terms of time served. The relatively consistent approach to time served by murderers in England and Wales over the last decade ( 14 to 17 years) is in stark contrast to the increases in Ireland (from 11 to 22 years).”

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    Mute The Throwaway
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    Jul 2nd 2015, 4:28 PM

    The newspaper article you’re quoting is an opinion piece. The CSO figures also clearly illustrate a wide range of time served which in itself indicates a considerable variable in the likely length of time you’ll spend in prison, thus mitigating the effects of a mandatory ‘life’ sentence. Also, the numbers of convictions for ‘life’ sentences is considerably less than those for other serious offences where someone has been killed, like manslaughter or dangerous driving causing death.
    So on the whole, it’s not a great article to quote. It’s fairly weak in fact, and it’s mostly opinion rather than fact (albeit with a few facts thrown in).
    The fact remains that when you look at all prison sentences where someone was killed, then the likelihood is that you will serve single digit years. Sentencing should be a lot more harsher in Ireland; especially where you take the life of another person.

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    Mute Diarmaid Mac Aonghusa
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    Jul 2nd 2015, 4:39 PM

    But you cannot compare manslaughter with murder. Manslaughter covers a much wider range of crimes. A single punch after a loud drunken argument where both sides have been aggressive can lead to death. That is manslaughter but it is not the same as pre-meditate killing and in such circumstances a suspended sentence may be the correct decision. Sometimes terrible things happen and they are by awful chance and not intended.

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    Mute The Throwaway
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    Jul 2nd 2015, 8:32 PM

    I understand where you are coming from, and I wasn’t suggesting that we compare manslaughter with murder. The two points I was trying to draw attention to were (1) that on ‘life’ sentencing alone there is a considerable variable in ‘Life’ sentencing which suggests a wide range of application of the term ‘life’ to a sentence and thus reduces what a ‘life’ sentence actually is. And (2) that if you include, not compare but include other sentences where a life has been lost that the overall figure of prison sentencing means that the number comes down to single digits.
    I’m a great believer in the likes of broken windows’ theory and of restorative justice, and dare I say it, but suspended sentencing is a useful thing in the right circumstances. But I’m personally of the believe that if you take another’s life as a result of your actions that you should then be put in prison for the rest of your life. I do not see any natural justice or common justice in having one person six feet under and their family handed a lifetime of pain, and for the other person(s) to be left free after X amount of time. There are tragic occurrences, as you mentioned like one punch incidents, but a life has been lost forever as the result of another’s chosen actions. I personally feel there needs to be an accountable responsibility to ones actions. I may well be alone in thinking that however.

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    Mute Noah_MacMurchada
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    Jul 2nd 2015, 3:18 PM

    Very sad.
    Victoria looks like a lovely person, a gentle soul.
    She did not deserve to die like that.

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    Mute Edwin Cashman
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    Jul 2nd 2015, 4:28 PM

    From previous information relating to the couple she was far from gentle however nobody deserves to be murdered.

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    Mute Anthony Jordan
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    Apr 18th 2016, 12:42 PM

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