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Women feel doctors 'normalise' loss of pregnancy, and first-time mothers 'not listened to', report finds

Over 270 women aged 18 to 80 participated in discussions for a report commissioned by a Department of Health taskforce.

A NEW REPORT commissioned by a Department of Health taskforce has highlighted some of the negative experiences of women in the healthcare system, with some sharing feelings of being ignored or having their grief and trauma dismissed after the loss of a child.

The report follows a ‘radical listening exercise’ commissioned by the Women’s Health Taskforce, which was established by the department in 2019. Over 270 women aged 18 to 80 participated in discussions led by independent researchers.

Some of the participants who had gone through pregnancy said the information provided to them through healthcare felt “detached, traditional” and did not prepare them for the unexpected.

“Women feel that loss and grief in pregnancy is normalised/accepted by medical professionals and society and therefore their emotional needs are not being met or supported with adequate services – counselling, grief support, coping skills,” the report found.

It points out that women’s experiences with healthcare professionals and with the system during these times are “extremely formative” and shape their perceptions of the healthcare system.

Some women said they felt well-cared and looked after and that staff had been empathetic and directed them to support services. However many reported a lack of understanding which left them feeling “very hurt, unsupported and their loss invalidated”.

First time mothers also reported feeling “judged and not listened to” and that there was an expectation they would cope. Some mothers who participated in the exercise said they felt their needs and preferences were given less importance than the welfare of the baby.

The Covid-19 pandemic added an additional challenge and barrier to support for those accessing maternity services, the report found.

Women reported feeling more isolated because they were cut off from the support and information sources of friends and family.

“Despite a heightened awareness of mental wellbeing during this time women did not feel they received any additional support,” the report notes.

Many participants who had given birth during the pandemic said they were already uncertain of themselves in their pregnancies and had found hospital restrictions preventing their partners from accompanying them “very emotionally challenging, isolating and frightening”.

“The restrictions were perceived as a further signal that they had to go it alone in terms of their pregnancy journey and deal with issues and struggles as they arrive.”

Speaking to The Journal about the findings in the report, Orla O’Connor, Director of the National Women’s Council of Ireland said the main point highlighted by the research is that there needs to be a shift that puts women at the centre of their healthcare.

“In so many instances they are not at the centre,” she said. “Look at the maternity restrictions – that was the needs of the hospital getting priority. In pregnancy it can be that what women want in relation to the type of labour or how they want to be treated is not at the centre and often decisions are being made for us. There’s a sense of dis-empowerment in relation to the health service.”

O’Connor said the research is an important piece of work, but women now need to “see evidence that they’re being heard”.

“Women are sharing their experiences a lot and they still feel as though they’re not listened to,” she said.

In terms of general healthcare, women who participated reported feeling rushed or “unheard” in appointments, that there was a lack of communication while they waited for services and that long waiting lists caused “fear and anxiety.”

Women also spoke about the impact of feeling that they carried the greater burden of responsibility of caring.

O’Connor said one of the most vital improvements in the healthcare system for women is the reduction of waiting times for services.

“A big part of this about waiting lists. That takes an enormous toll on women as they are not only negotiating for themselves but also for children and for older parents. Women are still the primary carers, negotiating for services for the whole family and it is hugely stressful.”

Some of the factors identified in the report that shaped the positive experiences participants had with the healthcare system include empathy and aftercare for mothers, an open and trusted relationship with GPs, effective communication in hospitals and proactive screening services.

Minister for Health Stephen Donnelly, who met with all participants at an online launch event today, said the report and the conversations it represents are “a vital part of how we create a new approach to women’s health” in Ireland.

“The report captures some very honest and candid feedback which shows us where we can build on good practices, but which can also help us critically assess where we can deliver more and better for women,” he said.

The minister said he will announce further measures to improve the delivery of women’s healthcare, informed and underpinned by the voices and perspectives in this report.

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    Mute Leadóg
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    Jul 23rd 2018, 7:12 AM

    FFS. My faith in humanity lessens by the day.

    939
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    Mute Sean Leonard
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    Jul 23rd 2018, 7:14 AM

    Unbelievable!!!

    493
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    Mute James Darby
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    Jul 23rd 2018, 6:46 PM

    @Sean Leonard: Unbelievable that they gave it back.

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    Mute Artur Gurta
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    Jul 23rd 2018, 7:27 AM

    Lowest of the low

    514
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    Mute Techguy.ie
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    Jul 23rd 2018, 7:21 AM

    S€umbags

    527
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    Mute Kárl
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    Jul 23rd 2018, 10:38 AM

    @Techguy.ie: Sure doesn’t the media tell ya that these people are the salt of the earth. They should be growing into dust.

    84
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    Mute Seriously stunned
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    Jul 23rd 2018, 9:09 AM

    If they Catch them Do like they do in North Korea.make the whole family and relatives pay for it.take the dole off all of them.

    279
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    Mute Tom Harpur
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    Jul 23rd 2018, 10:03 AM

    @Seriously stunned: better again if there caught wire them up to a defibrillator say 100 Jules or above or better again just wire them up to the mains and turn on the switch either way that person is a waste of spunk.

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    Mute Dan Skelton
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    Jul 23rd 2018, 7:38 PM

    @Seriously stunned: Favour the whole “punish the group for the act of the individual” eh? I like that

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    Mute Jordan Mac Fíonnbhar
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    Jul 24th 2018, 5:26 PM

    @Seriously stunned: that’s ridiculous

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    Mute Eric Walsh
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    Jul 23rd 2018, 7:37 AM

    Good man or woman! I bet you’ll wake up this morning and feel proud of yourself!!

    248
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    Mute Patrick O Connell
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    Jul 23rd 2018, 3:13 PM

    @Eric Walsh: well they won’t be waking up to go to work today or any other day

    116
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    Mute Michael Anthony Thompson
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    Jul 23rd 2018, 9:16 AM

    Same area that Dublin Bus has to detour away from every year during Halloween due to rocks and fireworks being pelted at the bus. Shameful.

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    Mute Y
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    Jul 23rd 2018, 6:16 PM

    @Michael Anthony Thompson: same shower that cry there’s no bus service during Halloween

    46
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    Mute john rhymes
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    Jul 23rd 2018, 8:38 PM

    @Michael Anthony Thompson: That’s the first Ive ever heard of no buses going through Cabra at halloween.. Would you have a link to that?

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    Mute John Jones
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    Jul 24th 2018, 2:58 AM
    7
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    Mute tottkingham
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    Jul 23rd 2018, 7:53 AM

    Could be on Done Deal.

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    Mute Gerry Caden
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    Jul 23rd 2018, 11:03 AM

    ….and when/ if the Gardai , having spent hundreds of man hours and bring suspects to Court, the untouchable judge will give the suspects a suspended sentence. These sorts of nuisance crimes should have mandatory custodial sentences in centres that don’t make it attractive for criminals to revisit. How about Victims Rights for a change.

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    Mute Alan Barry
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    Jul 23rd 2018, 8:10 AM

    Hope they catch them.

    A cardiac arrest ≠ a heart attack – these terms are not equivalent. Heart attack is a blockage of the coronary arteries / cardiac arrest is sudden cessation of the activity of the heart. Article confuses the terms.

    65
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    Mute Sandra Creevey
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    Jul 23rd 2018, 8:54 AM

    @Alan Barry: cardiac arrest can be caused by a heart attack though. ‘This can occur in a person with or without heart disease and may occur after a heart attack’. So maybe he did have a heart attack. Not the point of the article though.

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    Mute Shane Freeney
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    Jul 23rd 2018, 9:26 AM

    @Alan Barry: ffs get a life

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    Mute steovani
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    Jul 23rd 2018, 10:03 AM

    @Alan Barry: gotta love the volunteer emt know it alls!

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    Mute Alan Barry
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    Jul 23rd 2018, 10:22 AM

    @steovani: Indeed, without the volunteer EMT know-it-alls, who would know anything!

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    Mute Tommy Roche
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    Jul 23rd 2018, 1:38 PM

    @Alan Barry: Thanks Alan. Nice to see Grey’s Anatomy wasn’t totally wasted on you.

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    Mute John Mc Donagh
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    Jul 23rd 2018, 4:38 PM

    @Sandra Creevey: I learned a long time ago that Ireland is overflowing with Cardiologists!

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    Mute Eóin Ó Raghallaigh
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    Jul 23rd 2018, 9:20 AM

    Kip

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    Mute Eugene Tyson
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    Jul 23rd 2018, 7:24 AM

    News stories this morning are messed up. How about some cheery news. WTF is going on???

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    Mute Malachy Guilfoyle
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    Jul 23rd 2018, 10:46 AM

    Serial numbers will have been recorded in a log so if they turn up they can be traced. The Holmatro pump is very Fire Service specific, will stand out a mile if it’s offered for sale

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    Mute Quentin Moriarty
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    Jul 23rd 2018, 11:08 PM

    @Malachy Guilfoyle: will be crudely painted and the seller will say he got it in a garage sale in the UK

    Won’t have a bulls how to operate it no doubt

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    Mute gary mullen
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    Jul 23rd 2018, 11:38 AM

    If those responsible are caught they should be given at least 3 years, there is no excuse for this at all.

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    Mute Gerard Heery
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    Jul 23rd 2018, 9:17 AM

    Need money for the craic cocaine, it has to come from somewhere

    45
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    Mute Al
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    Jul 23rd 2018, 8:31 AM

    A cardiac arrest is not a heart attack I suggest The Journal team change the article

    Whatever about the deWalt saw the Holmatro pump is pretty much useless to them. Its used to power hydraulic tools used to extricate people from cars

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    Mute Sandra Creevey
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    Jul 23rd 2018, 8:49 AM

    @Al: don’t think they said the equipment was needed for this patient, just that it was stolen from the fire engine while they were with the man.

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    Mute Shane Freeney
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    Jul 23rd 2018, 9:25 AM

    @Al: Are you alright

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    Mute Al
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    Jul 23rd 2018, 12:48 PM

    @Sandra Creevey: I meant the equipment is of no use to those who robbed it

    Doubt many of them have holmatro brand cutters spreaders or rams lying around the shed

    10
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    Mute Will Gore
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    Jul 23rd 2018, 1:29 PM

    @Al: I thought it was a Honda 2k so I reckon the dopes assumed the same #wherearethesockets?

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    Mute Tommy Roche
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    Jul 23rd 2018, 1:43 PM

    @Shane Freeney: He’s grand. He’s got Google hat on. Two commenters going on about this, Alan and Al. Odd.

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    Mute Declan _
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    Jul 23rd 2018, 3:15 PM

    @Tommy Roche: both volunteer EMT aswell .

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    Mute Al
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    Jul 23rd 2018, 6:51 PM

    @Declan _: whats that got to do with anything?

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    Mute Davey Lawlor
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    Jul 23rd 2018, 7:24 PM

    @Tommy Roche: Or he could be a firefighter paramedic and giving people the facts that this news outlet got so very incorrect. Better luck with the next panel mate.

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    Mute Justin Hanley
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    Jul 23rd 2018, 11:25 AM

    What a low life that would rob items from a fire engine, s€um of the earth ,Hope there parents are proud of them

    37
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    Mute J. Reid
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    Jul 23rd 2018, 1:53 PM

    Our ridiculous tolerance for drug taking, and heroin junkies roaming the streets of Dublin, is what is responsible for this shocking rise in petty thievery. These people think that they can get money for anything, so they steal anything, no matter how many other people may be harmed as a result (such as the potential victims of this fire in Cabra, who may not have been helped efficiently because the firemen had to work without certain equipment).

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    Mute J. Reid
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    Jul 23rd 2018, 1:56 PM

    @J. Reid: *incident in Cabra (or any incidents which might have emerged later in the day)

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    Mute Tom Purcell
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    Jul 23rd 2018, 4:01 PM

    “…seller ‘persuaded’ to hand it over”…I notice the quotation marks in the headline…I hope the fine up-standing citizen who had the saw did not need a DFB ambulance as a result of the “persuasion”.

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    Mute Mick Collins
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    Jul 23rd 2018, 10:39 AM

    L°life s¢umbags

    23
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    Mute Niall Binéad
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    Jul 23rd 2018, 12:18 PM

    Little/big toerags! Whatever lowlife buys these from these gimps should also get harsh sentences like the bigtime crims that stole them! When they’re both caught and found not to have had a hard upbringing!

    18
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    Mute Justin Hanley
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    Jul 23rd 2018, 11:24 AM

    What a low life that would rob items from a fire engine, s€um of the earth ,Hope there parents are proud of them !!!!!!!

    20
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    Mute Stephen Kearon
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    Jul 23rd 2018, 4:13 PM

    Should be long mandatory sentences for those low lives who steal from emergency services

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    Mute Aidan Dorney
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    Jul 23rd 2018, 7:14 PM

    In fairness hardly the crime of the century seen the error of their ways handed the important equipment back somehow to the hard working members of DFB. Case closed move along. Lets be thankful it was not required at that moment to cut anybody out of a car for instance.

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    Mute Elizabeth Thewiz
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    Jul 23rd 2018, 11:49 AM

    Sickening hopefully they won’t need the services of the FB and if they do these parasites would be the first to complain that the FB arrived ill equipped. Somebody had to see them with all the rubberneckers around !

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    Mute Aidan Dorney
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    Jul 23rd 2018, 7:25 PM

    In fact apology case still open pump still outstanding hopefully it will be retrieved also.

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    Mute Niall Cummins
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    Jul 24th 2018, 1:15 AM

    Holmatro pump handed into Fire Station this evening by a member of the public.

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    Mute Liam Dempsey
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    Jul 23rd 2018, 10:03 PM

    Steeling cars was deemed by the cops as petty crime.

    1
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